Work For Us

The TSA is committed to matching the best possible candidates to our roles, to deliver a quality service to the TSC community. If you are interested in one of our vacancies, please read the Information Pack and feel free to contact us if you have any questions. Contact details for the role enquires are within the Information Packs.

Jobs Vacant


Title: Chief Executive Officer

The TSA has a vision of a world in which there is a cure for TSC (Tuberous Sclerosis Complex)

We are looking for a new Chief Executive Officer who will review and help the Board re-envision our strategy. This role offers the unique opportunity for someone who has proven managerial experience and visionary leadership qualities.

Tuberous sclerosis complex (TSC) is a genetic disorder that can cause non-malignant tumours to grow in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. TSC can lead to seizures, developmental delay, intellectual disability and autism. The incidence and severity of the various aspects of TSC varies widely between individuals.

The TSA is the only UK charity dedicated to supporting people affected by TSC. In our 40th anniversary year, we have reached the mid-point of our current 5-year strategy, having achieved great success in our Campaigns. We are looking for an effective new CEO who will review and help the Board re-envision the strategy for the next 5 years. Funding, supporting and promoting research is an important priority for the TSA, and the CEO will lead on all matters of fundraising with the support of a Head of Fundraising and a small team working on fundraising and communications. .Central to our mission is working together with those affected by TSC, researchers and professionals to improve services and access to treatments. Our personalized support services help hundreds of families in crisis each year.

The salary offered for this position is £50,000 (negotiable) plus non-contributory pension for a 35-hour week that can be worked flexibly in line with the needs of the organisation (this may include some evening and weekend work). The role is home-based but the ideal candidate will be suitably located to enable regular travel across the UK and to our office base in Southwark. Occasional international travel may also be required.

For further details, download our application pack here: 

TSA Job Application Pack TSA Job Application Pack (547 KB)

Closing date for applications is 12-noon on 6 March 2017 with interviews taking place in London at our offices (CAN Mezzanine) on 21 March 2017.