The TSA turns 40
As you know, we are celebrating the TSA’s 40th birthday.
This oﬀers the perfect opportunity for us to both reﬂect on where we’ve come from and the people who have been fundamental to the growth
of the charity, and to look forward to what we want to achieve with and for the TSC community. As part of this year of celebration we’ll
be bringing you a new TSA event, fundraising ideas and inspiration, and 40 stories from the TSC community and celebratory events and activities.
You can follow all of the celebrations and stories on our blog pages and our Facebook and Twitter feeds with the hashtag #TSA40stories.
We’ve compiled 40 fundraising ideas. We kick oﬀ here with a selection of activities to engage your friends, colleagues, schools and businesses.
As always our Fundraising Oﬃcer, Kathryn Harrison, will provide everything you need to make your all your fundraising activities enjoyable
Getting your business involved
- Sell 40 cakes to your colleagues
- Suggest the TSA as your company’s chosen charity
- Donate 40 hours of your staﬀ team's time to the TSA
Family and friend fundraisers
- Swim 40 lengths
- Take part in the TSA 5k or 10k Virtual Run and grab a #TeamTSA medal
- Commit to a monthly gift to the TSA
- Take the jump with skydiving opportunities across the country
Fundraising in schools
- Sponsored 40-minute silence
- Host a school disco
- Organise a family fun day
- Suggest a fancy dress or dress down day
Hope Walk, 17th June 2017
Take in the wonderful Edale skyline as we walk a 20-mile circular route through the Peak District National Park. To celebrate our
40th birthday we have organised a #TeamTSA fundraiser that you will not want to miss! We will walk at over 1000ft through some of the Peak
District's most breathtaking scenery including Win Hill Pike, Mam Tor, Kinder Scout and Lose Hill. We are working with the company Large Outdoors
who will provide insured ﬁrst-aid-qualiﬁed guides, and we will have our Fundraising Oﬃcer, Kathryn, in a support
car. After one fairly steep ascent the route is relatively ﬂat.
Cost: £25 per person and raise whatever you can in sponsorship
Date: Saturday 17th June
Time: 8am – 4pm
Start Point: Hope Station, Hope Valley, S33 6RR
40 Fundraising Ideas
In our 40th anniversary year the TSA is celebrating with 40 fantastic fundraising events. There is a range of events with something
for everyone! So, please have a look and see how you can be a part of #TeamTSA and help us to continue the work we do for the next 40 years.
Which one will you choose?
- 40 minutes sponsored silence in your school class room
Are your children always talking? Then this the challenge they can do with their friends. Its easy to organise and fun for all the class!
- Virtual 5k or 10k challenge
#TeamTSA super supporter Mark Holland introduced the 5 and 10k run or walk into the fundraising calendar in 2016. The TSA are now running
the event throughout October 2017. If you are interested in running or walking 5 or 10k in your own time, with or without family and friends,
and raising sponsorship while you do it, you will receive a bespoke TSA medal and know that you have supported TSA at the same time.
- Hold a pub quiz at your local pub or club
Are you a member of a club, or like to socialise in your local? If so, why not organise a night of fun and quizzes? The TSA can supply
quiz questions and fundraising materials to make sure your night goes with a bang!
- #TeaandSCones for TSA
This years Tea & SCones event is up and running. It is International TSA awareness week from Monday 15 to Sunday 21 May 2017, so why
not brew up and get a bake on for TSC? For a fundraising pack and all the details please visit www.tuberous-sclerosis.org/tea-and-scones-for-tsc-2017
- Raffle 40 prizes
This can be as big or small as you like, but everyone loves a raffle! Get 40 prizes donated by local businesses, shops, friends and family
and hold a raffle. Our fundraising officer, Kathryn, can provide you with an authorisation letter to help you get the prizes.
- Swim 40 lengths for TSC
Are you or someone you know a good swimmer? Do you want to swim 40 lengths and get sponsored for supporting TSA? You can do this as part
of a team, or individually. So, get your swim suits out and swim for TSC!
- Skydive or parachute
This is not for the faint-hearted! Do you want to do something a bit different or conquer your fears? You can skydive or parachute for
TSA. Please go to www.tuberous-sclerosis.org/new-challenge-events/parachute-jumps for all the information you need.
- Velocity Zip line
Why not take on Europe's longest zipline at speeds up to 100km an hour? Visit www.zipworld.co.uk for
more details and for booking your place!
- Caverns at Zipworld
Why not go down rather than going up, and take on the Zipworld Caverns. Zip World Caverns is a remarkable, uniquely exhilarating and atmospheric
underground adventure in a place which has been inaccessible for nearly 200 years. It is the ultimate all-weather adventure! Fr more information
and to book please go to www.zipworld.co.uk/adventure/detail/caverns
- TSA Hope Walk
As part of our 40th anniversary fundraising events, we have added the special TSA Hope walk. This is a 22mile walk around the
stunning Edale Valley in the Peak District. It will take place on Saturday 17 June 2017, and everyone is welcome! Please visit www.tuberous-sclerosis.org/web-app-events/hope-walk
- Great North Run 2017
The TSA has places available in the Great North run - the World's Biggest half marathon. If you want to challenge yourself and join tens
of thousands of other runners in this iconic closed-road run, please visit www.tuberous-sclerosis.org/new-challenge-events/big-fun-run-5k-events for the application form
- Vitality London 10,000
For the first time in 2017, TSA has places in this exciting new 10k run through the historic sights and landmarks of London. The run takes
place on Monday 29 May 2017, but you must be registered by Wednesday 12 April 2017. Please visit www.tuberous-sclerosis.org/web-app-events/vitality-british-10k-london-run to secure your place!
- Rotary Walk Across Wales
This annual event is organised by the Rotary Club in Wales, and is being held on Saturday 24June 2017. The full walk starts just south
of Machynlleth. Other sections start at Staylittle, Llandinam or the Devil's Elbow. Transport is provided from Newtown to the start points.
The walk ends at the Anchor, just over the border into Shropshire. Transport back to Newtown is available from the Anchor. Meals are provided
during the day and water is available at all the checkpoints. You can take part in the walk by registering before Monday 12 June 2017,
and support TSA. For more information please visit www.tuberous-sclerosis.org/web-app-events/rotary-across-wales-walk-2017
- Scotland Tough Mudder
The Tough Mudder team are hosting this exciting event on Saturday 17 and Sunday 18 June at Drumlanrig Castle, Thornhill, DG3 4AQ. You and
your team must be ready to run through dark wooded trails, over scenic hilltops and crawl through plenty of thick, dark mud and cover its
5 miles and 13 obstacles. Why not take this challenge on and be a part of #TeamTSA? For more information please go to toughmudder.co.uk/events/2017-scotland-half
- London to Paris Bike Ride
Various dates from June to September 2017. You'll spend 4 days in the saddle, cycling 299 miles from capital to capital, and finish at
the iconic Eiffel Tower. Spaces are limited though so if you are interested in doing this event then please contact Kathryn Harrison, our
Fundraising Officer, on 0161 681 6015 or email email@example.com as soon as possible to secure your place.
- Contact your local Rotary Club and ask for a donation of £140 to fund the local TSA groups..
The TSA's regional groups provide fantastic opportunities for individuals and families living with TSC to meet each other and Regional
TSA Advisors. Funding for these groups is essential, and receiving a donation from a local Rotary Club would be make a huge difference.
- Make TSA your employer's Charity of the Year
If you work it is highly likely that your employer has a chosen charity to support either monthly or annually. Why not be a TSA Champion
and put forward the TSA to be the next chosen charity?
- Sign up to monthly giving
With a £1.9m portfolio in research into TSC, as well as providing support across the UK, the TSA needs regular funding to ensure that this
work can continue. If you are not able to do any of the other 39 events on this list, why not make a regular monthly donation to TSA? It
is so simple. Go to www.tuberous-sclerosis.org/make-a-donation-tsa.html and
fill in the form. Once you had done this, that's it, but you will know that you have made a lasting difference!
- Run in one of the famous 'Great Run' series
Along with the Great North Run, there is a series of runs organised by the same company, which include the Great South Run and the Great
Manchester Run along with other runs in Scotland and Ireland. For more details please visit www.greatrun.org
- .If you prefer water to land, the Great Run organisers also hold the Great Swim series.
There are six Great swims throughout the country, so why not don your wetsuits and support TSA in 2017? Visit www.greatrun.org/great-swim for more details.
- Corporate support and team building
Does your company want to support a charity? Why not get them to donate 40 hours of staff time to organising a fundraising event, from
start to finish. They would decide on the event, advertise and promote it, organise it and complete the finished article, while having
fun and supporting TSA.
- Sell 40 cakes to your work colleagues
Everyone loves a cake, so why not sell 40 cakes during your coffee break, and bring a smile to everyone's face whilst raising funds for
- Simply enter an event of your choice
Whatever you fancy, its out there! From Zombie runs to bungee jumping, if you want to do it, our Fundraising Officer, Kathryn, can find
the perfect event for you!
- Hold a charity Golf Day – Are you a keen golfer and want to help the TSA doing what you love the most? Why not organise a
TSA Charity Golf Day at your Golf Club?
- The TSA has a range of merchandise which you can sell on our behalf. We have hoodies, T-shirts, running vests, badges and
trolley rings. This could be at a local open day or community event.
- Or do you enjoy getting into the Christmas spirit? Why not hold a Christmas card party? The TSA has 5-6 different festive
designs each year, and after our most successful year of Christmas card sales so far in 2016, you could help 2017 to be even bigger!
- Tell your fundraising story on social media – if you have a great TSA fundraising story to tell, then why not encourage others
to support TSA, and tell your fundraising story. Include a photograph and a short description of how and why you have chosen to support
us. This will help to raise awareness as well as funds.
- Is it a big birthday or anniversary in 2017? Why not give a special gift and invite your friends and family to give a donation
to TSA in lieu of a present? It's simple and easy to do, by either making a donation through our website at www.tuberous-sclerosis.org/make-a-donation-tsa.html or send a cheque. Our Fundraising Officer can also supply you with balloons, information leaflets about where the money is going to, as
well as collection tins.
- Big Fun Runs are held throughout the UK, and can be a real family affair! You and your family, can complete this 5k walk,
run,or crawl in this organised event. Big Fun Runs take place between Saturday 15 July and Sunday 29 October 2017. To find a Big Fun Run
near you, please visit www.bigfunrun.com/venues
- Climb Mount Snowdon, Wales, in Summer 2017. Feel on top of the world and reach the highest point in Wales while you help to
raise money for TSA with this exhilarating 8 mile walking challenge. Various dates are available in July, August and September 2017 and
the entry fee is £35 per person. Please visit www.tuberous-sclerosis.org/web-app-events/climb-mount-snowdon-summer-2017 for
- Edinburgh Colour Vibe, Scotland - Saturday, 23 September. Get ready for the most colourful fun-filled day of your life at
the Edinburgh Colour Vibe 5K run! Get your friends and family together and have the time of your lives as part of #TeamTSA! To sign up
- Get those wheels out and take part in the London to Brighton Cycle Challenge - Sunday, 17 September, 2017. Join over 1000 cyclists taking part in this exciting 54 mile ride from Central London to Brighton Sea Front.
To register please visit www.londonbrightoncycle.co.uk
- Hold a themed party - invite your family and friends to dress up as they did in your favourite music era, or as a type of
food! You can have real fun with this! The wackier the better! You can fundraise by selling tickets to the party, asking for donations
on the night or charging guests to take part in party games.
- Own Clothes Day
Everyone loves to wear their own clothes, especially when it’s a hot day in an office or at school. Now
that summer is on its way, why not hold a dress down Friday, or an own clothes day? It could cost £1 to enter on the day, with proceeds
coming to TSA.
- Send 40 TSA Christmas cards
At that special time of year, why not send a TSA Christmas card to 40 of your family and friends, and share the magic of Christmas by supporting
- Make a Just Giving donation
If you don't have a lot of time, but would like to support the TSA in its 40th anniversary
year, please visit www.justgiving.com/tuberous and make a one-off £40
donation. By visiting this page, you will see the stories of some of the wonderful fundraisers we have supporting the TSA!
- Hold a coffee morning at your local church or community centre in support of TSA.
This will not only help to raise important funds, but it will also help to raise awareness of TSC, which is equally important!
- Virgin Money London Marathon 2018
The TSA will have 5 places in the London marathon in April 2018. You can apply now to
register your interest in getting a place, or you can enter the public ballot, which will be open for a week on Monday 24 April 2017! Please
visit www.virginmoneylondonmarathon.com/en-gb/ during the
week of 24 April 2017 to enter the ballot for your marathon place in 2018. If you are not successful in the public ballot, you can be put
into the draw for one of the 5 TSA marathon places. To register your interest with TSA, please email Kathryn at firstname.lastname@example.org
- Take on the challenge of a lifetime with a variety of national and international challenges.
We work with leading UK suppliers
so you can have a once in a lifetime experience, while raising much needed funds for the TSA. Chose between treks to places such a Great
Wall of China and Everest Base Camp, or Husky trails in Lapland. Please visit www.tuberous-sclerosis.org/new-challenge-events/globe-trotting for more details.
- Take on a challenge that's inspired by you!
In recent months, the fundraising team have seen more personal challenges,
such a beard shaves, leg waxes or drastic hair cuts. If you would like a change of appearance, or to do something similarly drastic, and
would like to support TSA at the same time, why not get sponsored for making that change?
Our fundraising Officer, Kathryn Harrison, will be able to help you with any event that you chose to do. You can contact Kathryn on Tel: 0161 6816015 or Email: email@example.com and she will happily
talk to you about they best way to do your chosen event. Kathryn will also be able to provide you with sponsorship forms, collection tins,
T-shirts, running vests and other fundraising materials.