Fellowship Award: Challenging behaviour and Autism Spectrum Disorder in Tuberous Sclerosis Complex: From research to practice
Grant holder: Dr Lucy Wilde
Institution/University: Cerebra Centre for Neurodevelopmental Disorders, University of Birmingham
Project status: Completed – end of Dec 2017.
Challenging behaviour and autism are common in Tuberous Sclerosis Complex (TSC) and significantly affect the well being of people with TSC and their families. The most likely causes of challenging behaviour in TSC include pain and discomfort, poor communication and the effects of some aspects of autism. The aims of this study are to identify risk markers for the development of challenging behaviour.
The researchers will also assess the usefulness of tools designed to assess pain in children who cannot communicate. In a second project, methods for identifying the early signs of autism will be trialled for the purpose of improving early identification in TSC.