Take Part In Research


The following studies are taking place in the world of TSC research. 

As well as funding research, it is important to the TSA that we assist other researchers with study recruitment and provide opportunities for our community to take part in research.

The studies listed on this page are all open for volunteers to take part in either trials, surveys or other activities.


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      Challenging Behaviour in TSC

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      EDiTS Study

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      Exploring difficult behaviours in tuberous sclerosis complex: An online survey and telephone interview

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      Genes and the kidney in Tuberous Sclerosis

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      Genetic Causes of Tuberous Sclerosis

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      Measuring communication in genetic syndromes: A pilot study

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      Sleep in Children with Neurodevelopmental Disorders

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      Trial of Everolimus in the treatment of neurocognitive problems in TSC - TRON study

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      Understanding impulsive behaviour in Tuberous Sclerosis Complex

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