Understanding impulsive behaviour in Tuberous Sclerosis Complex


The TSA fund this Research Fellowship project based at the University of Birmingham lead by Dr Lucy Wilde.

Why is this research being done?

Previous research has suggested that some children with TSC may show high levels of impulsive behaviour, for example difficulties stopping something once they have started or ‘putting the breaks’ on behaviour. We would like to understand more about this type of behaviour and what abilities might be related to it. This may help to identify where interventions for this behaviour can best be targeted.

Who can take part?

Children with Tuberous Sclerosis Complex (TSC) aged between 3 - 15 years. The activities involved are suitable for children with a developmental age of around 3 years or above. Typically developing siblings aged between 3 - 15 years can also take part. Children do not need to show impulsive behaviour to take part.

What will it involve?

Before we meet your child we will speak with you on the phone about their skills and abilities. On the day of the research we will play a number of games with your child which involve abilities related impulsive behaviour and will observe their behaviour during these activities. We will also carry out a brief assessment of your child’s level of ability. You will be asked to fill out some questionnaires about your child. This will take place over one day (a maximum of 5 hours) and can take place at your home or you can visit the university, if you prefer. You will receive an individualised feedback report about your child’s results.

What will it involve?

Before we meet your child we will speak with you on the phone about their skills and abilities. On the day of the research we will play a number of games with your child which involve abilities related impulsive behaviour and will observe their behaviour during these activities. We will also carry out a brief assessment of your child’s level of ability. You will be asked to fill out some questionnaires about your child. This will take place over one day (a maximum of 5 hours) and can take place at your home or you can visit the university, if you prefer. You will receive an individualised feedback report about your child’s results.

This video explains more about the project:

Who should I contact to take part / for more information?

Dr Lucy Wilde, School of Psychology, 
University of Birmingham, 
Edgbaston, Birmingham, B15 2TT
Tel: 0121 414 9775 or l.v.wilde@bham.ac.uk



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