Parents of children with TSC aged between 2 – 15 years.
We are interested in working with individuals with Tuberous Sclerosis Complex because sleep disorders are particularly common in this syndrome. We hope that this study will enable us to understand any specific sleep problems that children with Tuberous Sclerosis Complex experience, and how these affect parents. This new research project is being conducted by researchers at the Cerebra Centre for Neurodevelopmental disorders at the University of Birmingham.
We will ask you to complete an online questionnaire about your child's sleep habits, behaviour and information about their health and adaptive abilities. We will also enquire about your own sleep quality and daily functioning. If you prefer, we can provide you with a paper copy of this questionnaire. You will receive personalised feedback regarding your child / the person you care for.
Please follow this link to read an information sheet about the study HERE
Password is cerebra
After having reading the information sheet, if you think that you and your child you care for are interested in taking part in this study, you may complete the consent form and the online questionnaire. Alternatively, if you have further questions about the study or would like a paper copy of the questionnaire, please either telephone:
Jayne Trickett on 0121 414 2855 or email her at firstname.lastname@example.org