Video clips

The website of the Genetist Interest Group (GIG) has video clips featuring people talking about living with a genetic condition. An individual with TSC is the first person featured in all the clips.
Click here to visit the clips page on the GIG website.

The TS Alliance (USA organisation) have produced a video clip showing Infantile Spasms in TSC. Click here to view.

Information to download

The following items on this page can be downloaded for viewing or printing. Click on the title to download the item.

Information sheets
Travel insurance for people with TSC
Epilepsy alarms (night time use)

AGM 2007 - summaries of talks
Aiming High - A New Agenda for Disabled Children and their Families: Key note speaker Philipa Russell
click here for a summary
click here for a copy of the slides

Other summaries to follow.