Professionals

This section is for professionals involved in the care of children and adults with Tuberous Sclerosis Complex.

Information
The TSA produces a large selection of published information much of which can be downloaded from this website. There is an illustrated medical brochure for doctors, leaflets specially written for nurses and factsheets on a variety of topics (eg. epilepsy, behaviour, skin treatment, brain imaging). Our Specialist Advisers are available to answer any questions you may have and can refer to members of our Professional Advisory Board (see below) who are leading TSC experts.

Clinical guidelines
Clinical guidelines have been been produced by panels of experts in Tuberous Sclerosis Complex.

For the care of patients with Tuberous Sclerosis Complex
These guidelines were first compiled by the TSA Medical Advisers in 1998 and are reviewed regularly. The full document has not been published yet. Click on the title to download a summary. For information about the full document email Jane Cox, Deputy Head of Research.

For the Assessment of Behaviour and Learning in Tuberous Sclerosis Complex
These guidelines were first published in 2005 and have been written by a panel of experts in TSC. They are endorsed by the TSAlliance (USA) as well as the TSA (UK). Click on the title to dowload a copy.

Specialist clinics
A number of specialist TSC clinics are located around the country. See the TSC clinics page for more information.

Training
Study Days for professionals are held throughout the year, see the TSA events listing page for details of forthcoming events. Specialist Advisers are also available to visit residential homes and schools to give talks and training sessions on TSC.

Research
A variety of research continues to be funded by the TSA. See the research section of the website for more information.

Professional Advisory Board
The Tuberous Sclerosis Association was formed in 1977 by a group of parents, affected individuals and doctors and has continued to work closely with doctors and other professionals. A Board of Professional Advisers meets annually and advises on research projects and on other medical aspects related to TSC.