Professionals
This section is for professionals involved in the care of children and adults with Tuberous Sclerosis Complex (TSC). It outlines the information and resources we offer to support those caring for individuals with TSC.
Our regional Specialist Advisers are available to answer any questions you may have and can refer to members of our Professional Advisory Board who are leading TSC experts.
Published information about TSC
Visit our publications page for brochures and leaflets written specifically for professionals (doctors, nurses, teachers).
Below you can download guidelines for care and management relating to specific aspects of TSC.
- For the care of patients with Tuberous Sclerosis Complex (summary) These guidelines were first compiled by the TSA Medical Advisers in 1998 and are reviewed regularly.
- For the Assessment of Behaviour and Learning in Tuberous Sclerosis Complex These guidelines were first published in 2005 and have been written by a panel of experts in TSC. They are endorsed by the TSAlliance (USA) as well as the TSA (UK).
- NICE CKD (chronic kidney disease) guidelines (summary). This summary has been prepared by a kidney specialist
- SIGN Guidelines Diagnosis and Management of Chronic Kidney Disease, June 2008 (Scottish Intercollegiate Guidelines Network)
Study days & training
- Conference and study days are held from time to time
- TSA specialist advisers are available for in-house training sessions
- Become a professional member of the TSA to join our mailing list
TSC specialist clinics
Each TSC clinic has slightly a different remit and speciality.
TSC Clinics are held in Bath, Belfast, Cambridge, Leeds, London (Institute of Psychiatry), London (St Georges) and York
Research
The TSA continues to play a major role in TSC research.
Projects funded include social, behavioural and clinical projects
