Professional Advisers

The TSA is a registered charity compliant with all areas of charity law.

The Tuberous Sclerosis Association was formed in 1977 by a group of parents, affected individuals and doctors and has continued to work closely with doctors and other professionals. A Board of Professional Advisers meets annually and advises on research projects and on other medical and scientific aspects related to TSC.


Current Professional Advisers

Dr Richard Appleton
MA, FRCP, FRCPCH, Consultant Paediatric Neurologist with specific interests in epilepsy and acquired brain injury rehabilitation, The Roald Dahl EEG Department, Paediatric Neurosciences Foundation, Alder Hey Children’s NHS Foundation Trust

Professor Patrick Bolton
MA BSc, MB, BS, MRC Psych, Consultant in Child and Adolescent Psychiatry, The Institute of Psychiatry, London.

Dr Antonia Clarke
MB, Bch, BAO, MRCP, Consultant Paediatric Neurologist, St Georges Hospital Tooting

Professor Pamela Crawford
MB, ChB, MD, FRCP, Consultant Neurologist with a special interest in epilepsy, York District Hospital,visiting Professor in Community Neurological Studies

Professor Petrus de Vries
MBChb, MRCPsych, PhD, Sue Struengmann Professor of Child & Adolescent Psychiatry, University of Capetown Division of Child & Adolescent Psychiatry

Dr Alan Fryer
Consultant Clinical Geneticist, BCs MB.BS MD FRCP FRCPCH, Royal Liverpool Children’s Hospital

Professor Paul D Griffiths
FRCP, PhD, FMedSci, Professor of Radiology, Royal Hallamshire Hospital, Sheffield

Professor Paul Gringras
Consultant Paediatric Neurologist, St Thomas’s Hospital, London

Dr Elaine Hughes
Consultant Paediatric Neurologist, Paediatric Neurosciences Dept. Kings College Hospital, London and Paediatric Neurology Dept, Evelina Children’s Hospital, London

Dr Ayla Humphrey
PhD, Consultant Clinical Psychologist, Psychology Lead, Children’s Division, CPFT, Affiliated Lecturer, Department of Psychiatry, University of Cambridge

Professor Simon Johnson
BSc DM FRCP Senior Lecturer/Honorary Consultant Physician, Queens Medical Centre Nottingham

Dr Chris Kingswood
MBBS, FRCP, Consultant Renal Physician, Sussex Kidney Unit, Brighton & Sussex University Hospitals Trust.

Professor Margaret Knowles
Professor of Experimental Oncology, Leeds University

Dr Finbar O’Callaghan
Consultant Paediatric Neurologist, Royal Bristol Children’s Hospital
Emeritus Professor Sue Povey MA, MD, Professor of Genetics, The Galton Laboratory, London

Dr Howard Ring
MRCPych MD, University Lecturer & Honorary Consultant Psychiatrist, University of Cambridge
Professor Julian Sampson DM, FRCP, FMedSci, Clinical Geneticist, expertise in molecular and clinical genetics of TSC, Institute of Medical Genetics, University of Wales [website]

Dr Paramala J Santosh
MBBS DipNB (Psych) MRCPsych MD, Consultant in Child and Adolescent Neuropsychiatry and Psychopharmacology & Honorary Senior Lecturer, Institute of Child Health & Institute of Psychiatry, London & Great Ormond Street Hospital

Dr Charles W Shepherd
Consultant Paediatrician, Regional TSC Clinic, Belfast City Hospital, N Ireland

Dr Andrew R Tee
BSc PhD, Non-clinical Research Lecturer/AICR fellow, Institute of Medical Genetics, Wales College of Medicine [website]

Dr Richard Trompeter
Paediatric Nephrologist, Great Ormond Street Hospital

Dr Neil P Walker
FRCP, Consultant Dermatologist, Churchill Hospital, Oxford

Professor John R W Yates
MA, MB, BS, FRCP, Emeritus Professor of Medical Genetics University of Cambridge