Welcome to the Web site of the Tuberous Sclerosis Association, the UK charity that supports sufferers, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis (TSC).

What is Tuberous Sclerosis Complex? TSC is a complex genetic condition caused by an alteration in a gene. People with TSC have growths, sometimes called tubers or lesions in different organs of the body (brain, heart, eyes, skin, kidneys, lungs) and may have epilepsy, learning disabilities, autism spectrum disorder and kidney problems. Symptoms vary from one person to another with some people showing very few symptoms and others more severely affected.

Tuberous Sclerosis Association magazine

Item added on 22nd June, 2008 and posted in News.

Click here to download the June issue of Scan magazine. This issue focuses on Epilepsy.

Direct Payments Survey

Item added on 28th May, 2008 and posted in Policy/campaigns.

Carers UK are conducting a survey of carers’ experiences of direct payments. More »

Tuberous Sclerosis International Research Conference - programme announced

Item added on 28th May, 2008 and posted in Events.

11-13 September 2008, University of Sussex, Brighton, UK
The provisional scientific programme has been announced and abstracts are invited. Click here for more information.