With your help, the possibility of a cure is closer than ever. As TSC is a significant genetic cause of epilepsy and autism, every pound raised to find a cure and better treatments for Tuberous Sclerosis Complex can also mean a better understanding of epilepsy and autism, even cancer – diseases that touch nearly everyone we all know and love.

So, with our ‘Write Away’ campaign we ask you to please email a personal letter to your family and friends requesting support for the Tuberous Sclerosis Association. Funds collected will assist the TSA in funding vital family support services and TSC research projects.

Write a short personal account of your child or yourself , ‘living with TSC’, and attach a photo. Please request a donation to the TSA in support of our work. Direct them to this website www.tuberous-sclerosis.org and tell them that to donate online they just click “donate”. All donations will be acknowledged in the usual way.

‘Helping children with tumours’

‘Helping all those ‘touched’ by TSC’

With huge thanks from the TSA.

See our new events calendar which lists month by month all the runs, treks and other fundraising opportunties you can sign up for.

Did you know that you can shop on-line with many major retailers and support the TSA at the same time?

A large number of retailers, including many big names, support our fundraising by donating to the TSA for every purchase made via our webshop. So if like millions of others you plan on doing your shopping online visit our buy.at/ website and use the links to the online retailers.

We have been awarded 5 London Marathon running places for the next five years. To find out more or to book a place contact Anne Carter on 0115 9234301 or use the contact form.

The TSA Merseyside Support Group is a group of people, who have TSC or who are caring for a child or adult with TSC, who meet every two months to share experiences and news. continue

The 9th International Research Conference on tuberous sclerosis complex (TSC) took place on 11th to 13th September 2008 at the University of Sussex in Brighton. The only major conference in the TSC field this year and the first for four years in the UK, the conference comes at an exciting time for TSC-related research. Considerable scientific interest was sparked by recently published UK and US work on Sirolimus, a drug with potential to shrink TSC tumours. Worldwide Phase III clinical trials into Sirolimus as a therapy for brain and kidney lesions in TSC are due to start imminently. This attracted speakers and delegates from eminent institutions across the world, including the Mayo Clinic and Harvard, resulting in a truly international gathering of specialists in this field.

The diverse programme featured research presentations in the areas of clinical problems, epidemiology and natural history, neurobiology and epilepsy, neurocognition and behaviour, social care, TSC genetics and molecular biology and clinical trials.

Hosted by the Tuberous Sclerosis Association, this conference builds on a tradition dating back to an inaugural TSC research conference in 1979. By bringing together world leaders in the field, the Tuberous Sclerosis Association anticipates this conference will build on recent successes, spark more breakthroughs and speed up the day when hopes of a treatment can become a reality.

Videos and presentations presented by the Keynote Speakers are now available to view or download.