Tuberous Sclerosis News

  • Introducing the TSA's Interim CEO Maxine Smeaton

    The TSA is delighted to announce that Maxine Smeaton is now in post as Interim CEO of the Tuberous Sclerosis Association. Maxine, former CEO of renowned medical research charity Blond Mc..

  • Wanted - Rare Disease Day 2018 campaign stars!

    Would you like to share your TSC research story? We are looking for people who have taken part in research into TSC who are willing to share their experiences about this - either on video..

  • Survey into TSC - £25 on completion

    Do you have TSC and have had seizures within the past 6 months, or live and care for someone who does? The TSA have been approached by Adelphi Values about a survey they are unde..

  • We need you

    We want to make sure that each and every one of you, our valued supporters, are getting all that YOU want and need from the TSA. In the coming months we will be sharing lots of information..