Tuberous Sclerosis News

  • Jayne Spink, CEO, leaves to take the lead at Genetic Alliance UK

    Date: 08-Feb-2017

    Our first ever CEO, Dr Jayne Spink, will be stepping down in April after 5 years with the TSA. Since Jayne joined the TSA we have seen an unparalleled period of growth and expansion, and we would like to offer her our grateful thanks for her leadership. Jayne leaves the TSA to become CEO of Gene.. ...more

  • London Marathon 2017 - introducing #TeamTSA

    Date: 04-Feb-2017

    Today we'd like to introduce to you our amazing London Marathon #TeamTSA. Please take a few moments to click on each of their names to read their full stories and to support them with their fantastic efforts as fully as you can, whether that means sponsoring them, telling friends and family abou.. ...more

  • ​Everolimus granted European Licence for refractory epilepsy in adults and children with TSC

    Date: 01-Feb-2017

    Everolimus (trade name Votubia®) has been approved by the regulators for use in the European Union as a treatment for refractory partial-onset seizures in children (aged 2 years and older) and adults with TSC.The term “refractory” refers to seizures that have stopped responding to other availabl.. ...more

  • TSA Big Day and Outlook weekend 2017 - save the dates

    Date: 31-Jan-2017

    The Outlook weekend will be held on Friday 22 and Saturday 23 September 2017 in The Belfry, Oxford ( The TSA Big Day and AGM will be held on Saturday 23 September 2017 also in The Belfry, Oxford (ht.. ...more