We need you

woman holding a card with the words click here We want to make sure that each and every one of you, our valued supporters, are getting all that YOU want and need from the TSA. In the coming months we will be sharing lots of information with you, including:

  • Progress of our #EverolimusforEpilepsy campaign
  • Opportunities to share your experiences of taking part in research for Rare Disease Day 2018 and
  • All the fun-filled and personally fulfilling ways that you can get involved with our yum-tastic Tea and SCones 2018 fundraising campaign to name but a few.

To do this we need to make sure that we have the most up-to-date contact information on everyone who supports the TSA in any way and so we are currently in the process of refreshing all our records on our central database.

We therefore would be super-grateful if you would please take five minutes to fill in this quick and easy form and help us to help you support the TSA, and the amazing TSC community, to the max.

We need you to complete this form before Friday, 25 May, 2018 please as this is when the new General Data Protection Register (GDPR) laws come into force.

Many thanks