We need you


woman holding a card with the words click here We want to make sure that each and every one of you, our valued supporters, are getting all that YOU want and need from the TSA. In the coming months we will be sharing lots of information with you, including:

  • Our opening hours and access to TSA Advisers over the Christmas and New Year holiday period
  • Progress of our #EverolimusforEpilepsy campaign
  • Opportunities to share your experiences of taking part in research for Rare Disease Day 2018 and
  • All the fun-filled and personally fulfilling ways that you can get involved with our yum-tastic Tea and SCones 2018 fundraising campaign to name but a few.

To do this we need to make sure that we have the most up-to-date contact information on everyone who supports the TSA in any way and so we are currently in the process of refreshing all our records on our central database.

We therefore would be super-grateful if you would please take five minutes to fill in this quick and easy form and help us to help you support the TSA, and the amazing TSC community, to the max.

And it would greatly help our admin team if you can complete this form before Friday 10 November 2017 as we have extra staff working on our database during this time.

Many thanks