Wednesday February 28 is Rare Disease Day 2018 and we would like as many people as possible who are affected by TSC to mark this day to help raise awareness of rare diseases amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
One in every 17 people will live with a rare disease at some point in their lives. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.
Rare Disease Day is for everyone - the general public, rare disease patients, their families, carers, healthcare professionals, researchers, companies and politicians. You do not have to be directly affected by a rare disease, everyone can get involved!
It's really easy to show your support - post an image or selfie on any social media channel with your face painted and include the hashtags #ShowYourRare, #MyRare or #RareDiseaseDay. Share an image on your own or with your friends, family or colleagues!
To find out more, and for more ideas on how you can get involved, then please go to www.rarediseaseday.org
And you can watch the #RareDiseaseDay 2018 video here: https://www.youtube.com/user/rarediseaseday