Media Release - Louise Fish to join TSA as new Chief Executive Officer

Louise Fish is to join the Tuberous Sclerosis Association (TSA) as its new Chief Executive.

Louise, a former Director of Communications at NICE, Director of Communications and Engagement at the NHS Confederation and,most recently, a Senior Director with Tonic Life Communications, will join the TSA on 5 June.

The TSA is currently celebrating its 40th anniversary and Louise will be the organisation's second CEO, following on from Dr Jane Spink, who is about to join Genetic Alliance UK as their Chief Executive.

Speaking about her appointment Louise said: “The TSA has had some amazing successes in improving research, care and support for individuals living with TSC over the past few years, and I am excited about working with everyone to build on them. I’m looking forward to bringing my passion and experience to the staff team, and working with the TSC community to further improve research, care and support for everyone affected by TSC. My focus is to make sure that everything the TSA does supports the community’s vision of providing hope for today and a cure for tomorrow.”

Martin Short, Chair of the TSA Trustee Board, said: “I am delighted that our search for our second CEO has led us to Louise. She has a wealth of experience that is relevant to leading the TSA and I am confident that she will take us forward with vision and sensitivity. Louise has a passion for communities like ours and I am sure there will be exciting developments ahead as she builds on Jayne's work.

"We are grateful to Jayne for an unparalleled period of transformation, growth, development and achievement within the TSA. Her distinctive place in our 40 year history is assured."

Louise has produced a short video for the TSC community which can be viewed on YouTube here:

Louise will start work at the TSA on Monday 5 June and can be contacted thereafter on:

And for more information about the TSA please go to




For further information, please contact:

Sarah Roberts, Tuberous Sclerosis Association


Tel: 07870 210308


Photo Captions:

Louise Fish, incoming CEO of the TSA



Notes to Editors:

Tuberous Sclerosis Complex (TSC) is a genetic disorder that causes growths to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. Some people with TSC experience epilepsy, developmental delay, learning and other disabilities, autism and challenging behaviour.

The Tuberous Sclerosis Association ( is the only UK charity dedicated to supporting people affected by TSC.  The charity has invested over £10 million in support services and medical research.