Invitation to take part in access to medicines survey.
The Association of British Pharmaceutical Industries (ABPI) has commissioned a survey to find out about patient and carer views and experiences in relation to accessing medicines (in the case of TSC, accessing Everolimus). The findings of the survey will be used to raise the profile of rare diseases and issues relating to accessing medicines. It should take 10 to 15 minutes to complete the survey.
If you have TSC and would like to take part in the survey click HERE
If you are a carer and would like to take part in the survey click HERE
The surveys close on 25 April.