Patient experiences of Individual Funding Requests (IFRs) survey.
Have you accessed a treatment for TSC through an Individual Funding Request (IFR)? Have you failed to gain access to a treatment that you need via an IFR?
Genetic Alliance UK is looking to hear from patients and their families about their experience of applying for an IFR.
Please fill out this survey to tell NHS England how the IFR is working for patients trying to access treatment to help make sure the process works for everyone in the future.
The deadline for responses is Monday, December 12, 2016.