Greg Mulholland MP secures parliamentary debate

Greg Mulholland MP has secured a parliamentary debate entitled ‘Access to drugs for ultra-rare diseases’! It’ll be next Tuesday, 16th June, 2.30pm-4pm, so a whole hour and a half of MPs raising their concerns directly with George Freeman.You can help by emailing and/or tweeting your MP.  You can also join a Twitter Chat hosted by Greg on Monday 15th June 2.00-4.00pm,
Some draft tweets you can use:

  • Will you attend Westminster Hall debate next Tues, 2.30pm-4pm, and get @NHSengland to #fundourdrugsNOW?
  • Ministers must hold @NHSengland to account- will you attend Westminster Hall debate next Tues, 2.30pm-4pm? #fundourdrugsNOW
  • People failed by @NHSengland bureaucrats. Will you attend Westminster Hall debate next Tues, 2.30pm-4pm? #fundourdrugsNOW
  • Will you attend Westminster Hall debate next Tues 2.30pm-4pm & stand up for people with ultra-rare diseases? #fundourdrugsNOW

You can write to your MP HERE

or you can use this template letter:

Unmet Need for Services & Treatment for Tuberous Sclerosis Complex Unmet Need for Services & Treatment for Tuberous Sclerosis Complex (27 KB)