Big Day 2019 - everything you need to know

Tickets for Big Day 2019, the TSA's biggest event of the year, are now on sale! This year, we will be heading to Nottingham, with Big Day taking place at the Nottingham Belfry Hotel on Saturday 2 November.

The TSA has a strong connection to Nottingham dating back 40 years, we are delighted to be back! 

Nottingham Town Centre


All information about Big Day 2019 can be found on this page (please see below), with further information added here as we get closer to the day itself.

How do I book tickets to Big Day 2019 and is there a creche?

Tickets for Big Day 2019 can be ordered via Eventbrite here. We are pleased to confirm that we will have a creche for Big Day 2019 for children aged under 16. The creche will be hosted again by the fantastic Toy Library, who have been an asset at previous Big Day events.

Attendees who would like to use the creche are asked for a £15 deposit per child for use of the creche. The £15 will be reimbursed back to you following Big Day providing that you attend the day.

Anyone who requires financial support to attend Big Day 2019 should contact Rachael Wyartt (Head of Support and Information Services) to discuss access to the TSA's support fund: Rachael.Wyartt@tuberous-sclerosis.org / 0300 222 5737.

Nottingham Belfry Hotel

Background: Nottingham and TSC research

Nottingham is a driving force in TSC research, with the UK’s only specialist LAM clinic forming part of the Nottingham TSC clinic. We are delighted to have Professor Simon Johnson (Respiratory Medicine, University of Nottingham) at Big Day 2019, to give us an overview of the fantastic work taking place at the LAM clinic.

What can I expect at Big Day 2019?

Big Day is an opportunity for everyone in the TSC community to come together - from people living with TSC and their loved ones to clinicians and academics - to share experiences, get to know each other and hear about all-things TSC. You can expect to:

  • Be in an environment where people understand the impact that TSC can have on lives, with significant time allowed for networking
  • Discuss a range of topics, all focused on TSC, from external experts based around the UK
  • Have the opportunity to meet and get to know individuals and families affected by TSC
  • Take part in different workshops and talks, all specially designed to help the TSC community understand and access support, services and care

Which organisations and individuals will be speaking at Big Day 2019?

This year's Big Day is the biggest yet! We have worked very hard to offer you a full, rich and worthwhile programme designed with the TSC community in mind. Confirmed speakers include:

 
Nottingham city skyline

What sort of things will be discussed at Big Day 2019?

A full agenda for the day will be shared in good time before the day itself however, topics and workshops will include looking at:

  • Epilepsy information and advice, including everolimus for epilepsy
  • Autism information and advice, including promoting positive behaviour in autism and autism in children
  • TAND and mental health
  • How to be referred to a TSC clinic
  • TSC genetics and family planning
  • An overview of the LAM clinic in Nottingham
  • Q&A about the TSA's new support services from 2020
  • Accessing disability benefits and housing

What accommodation is available?

If you are planning on staying over at the Nottingham Belfry hotel, we are pleased to announce that they are offering discounted rooms to community members attending the Big Day. You will need to book by the deadline of 2 October to secure one of these discounted rooms. To book please contact the Nottingham Belfry’s central reservations number on: 0115 973 9393 and state that you are attending the TSA event. Please note these rooms need to be paid for in advance and are non-refundable.

As well as the Nottingham Belfry itself, there is a wide range of accommodation nearby and in Nottingham itself should you with to stay in Nottingham during the Big Day. This includes the DoubleTree by Hilton and Premier Inn Nottingham West.

I still have further questions

If you have any questions, ideas or feedback about Big Day 2019 (or Big Day in general), we would love to hear from you! Please contact us at comms@tuberous-sclerosis.org / 0300 222 5737.