Belfast patient conference - Understanding TSC-Associated Neuropsychiatric Disorders (TAND)


Register your place at the TSC patient conference - Understanding TSC-Associated Neuropsychiatric Disorders (TAND) - taking place at Belfast City Hospital on Friday 25 January 2019, 09:15 - 16:15.

The conference will feature a full day of varied and interesting talks and workshops from a wide range of TSC professionals including:
  • Prof Petrus de Vries (Professor of Child and Adolescent Psychiatry, University of Cape Town, South Africa)
  • Rachel Hardy (Genetic Counsellor, Belfast Trust)
  • Fiona O’Donnell (Community Support & Information Officer, The Special Educational Needs Advice Centre)
For more information on how to register, please contact Claire Kirk (TSA Advisor, Northern Ireland) at claire.kirk@tuberous-sclerosis.org. For those who are unable to make the event, we will update the TSC community via our various channels following the meeting.

The full agenda is as follows:

09:15 - Registration and coffee
10:00 - Chair: Prof Patrick Morison
10:00 - Overview of TSC (Rachel Hardy, Belfast Trust)
10:15 - Patient Perspective
10:30 - Introduction to TSC- Associated Neuropsychiatric Disorders (TAND) (Prof Petrus de Vries, University of Cape Town, South Africa)
11:30 - Coffee
11:55 - Local Support for Autism (Shirelle Stewart, The National Autistic Society)
12:15 - Emotional Regulation Tools for Young People with Autism (Rachel Ferguson, Middletown Centre for Autism)
12:45 - Patient Perspective
13:00 - Lunch
14:00 - Chair: Dr Deirdre Donnelly
14:00 - Patient Perspective
14:15 - Managing TAND: Current Treatments & Future Research (Prof Petrus de Vries, South Africa)
15:15 - Coffee
15:45 - Getting the Right Support in School for Children with Special Educational Needs (Fiona O’Donnell - SENAC (The Special Educational Needs Advice Centre)
16:15 - Conclusion of meeting (Louise Fish – Tuberous Sclerosis Association)