#worldTSCconference - Day 4 final update by Clare Kassa


I am sitting in Dallas Forth Worth Airport awaiting my first connection homeward bound to the UK. And I am reflecting on the last few days. 

When I arrived in Texas I had no idea what to expect, I have been to many conferences over the years, but a world conference how different could it be? Well I can put that right now, this is THE best conference I have ever attended for so many reasons. 

I have had the privilege of listening to world experts on TSC  sharing their knowledge and research with huge generosity.  I have met numerous families from both the UK and around the world who have taught me so much about TSC. It's the conversations you are able to have In the lifts, in the lobby, at lunch with Doctors and people with TSC. I will never forget it.

Last night was the Blue Ball, a dinner to commemorate Keith Hall, a TSC community member in the US who sadly died.  The dinner was served to over 800 people, and the atmosphere was convivial and jolly. Children with TSC ran around the room, as did their siblings, parents relaxing and community members making friends. This was a safe space where everyone understood. On our table was a shy young woman with TSC from California who was a talented artist and had entered the Art for a Cure competition. We also had a doctor from New York who had come along to support some of her patients. And there were also our UK parents AnneMarie Cotton and Carole Hagan.  



This opportunity to mix and learn throughout our time here has been what has made it so special. I always think the sign of a good workshop or conference is people swapping contact details and I have seen a lot of this. There will definitely be a surge in Facebook friendships In the coming days. (My Twitter following has definitely increased!)

I have also had the opportunity to get to know our friends from other organisations around the world. Particular thanks go to Clare Stuart from Australia and Frances Morton from New Zealand. I hope we can continue to build on these international links going forward, together we will always be a stronger force.



I am looking forward to sharing what I have learned with my colleagues at the TSA when I get back. TS Alliance I salute your organisational skills, what a conference!! It has definitely given me one or two ideas for our own Big Day in November!

Safe journies home everyone, we are all richer for our time in Texas.