Tuberous Sclerosis Association, UK
Tuberous Sclerosis Association, UK

Publications

For families and individuals [PDF]
Tuberous Sclerosis (2001) leaflet Download
The Child with TSC (2006) leaflet Download
TSC: a guide for adults and teenagers (2008) leaflet Download
A guide to travel insurance in the case of a Pre-Existing Medical Condition leaflet Download
A guide for you (for children and learning disabled adults) (2004) brochure Contact
For professionals
What the teacher of a child with TSC should know (2006) leaflet Download
TSC: A practitioners guide (2001) brochure Contact
Clinical guidelines for the care of patients with TSC summary (2002) factsheet Download
Clinical guidelines for the assessment of behaviour and learning in TSC (2005) factsheet Download
Ref. Factsheets by professional experts
Epilepsy
1 Epilepsy in TSC (1999) factsheet Download
28 Non-convulsive status epilepticus (2007) factsheet Download
Brain involvement
26 Subependymal giant cell tumours in TSC (SCGTs/SEGAs) (2006) factsheet Download
29 Brain imaging in TSC (1999) factsheet Download
Behaviour in adults with Tuberous Sclerosis Complex (2009) factsheet Download
Kidney involvement
21 Monitoring kidney problems in TSC (2001) factsheet Download
Other organ involvement
22 Cardiac involvement in TSC factsheet Download
25 Dermatological features of TSC and their treatment (2000) factsheet Download
Magazines and reports
Scan - the latest issue of our magazine for members magazine Download large file
Scan backcopies (June 2001 onwards) magazine Download
TSA annual report 2008/09 report Download