Membership
Being diagnosed with TSC or having your child, grandchild or sibling diagnosed, can be a very isolating experience. By joining us you will become a member of a group which understands how you feel and how varied your needs might be.
The TSA is dedicated to supporting individuals and families affected by TSC and to funding research into this complex disorder. If we know more about you we can tailor our services to your needs. Having a strong membership helps us educate those in power in government, health care and education on your behalf.
We are committed to involving our members in the development of our organisation so actively encourage feedback and involvement in our services and support.
Membership benefits
Our membership benefits include:
- Access to our regional advisers
- Access to professionals who are specialists in TSC via our own TSA advisers.
- Invitation to subsidised events.
- Copies of our publications and regular mailings.
- Information on and the opportunity to participate in the latest TSC specific research.
- Financial assistance via our benevolent funds.
A membership fee is payable. See TSA Membership rules. This is waived in some situations: those in residential care or supported living, new families joining the TSA and where there is financial hardship.
Our Board and Committees
The TSA is run by a Board of Trustess. Trustees are volunteers who have a personal connection with TSC. Many of them are parents of children with TSC or individuals with TSC.
Alongside the Board of Trustees there are four committees. Only members of the TSA can be trustees or be a member of a committee. The committees are:
- Finance Committee
- Appeals and Publicity Committee.
- Research Committee.
- Support Services Committee.
