Download Resources

 

Here you can find all downloads related to Research, Campaigning, Fundraising and Volunteering. If you need hard copies sent to you, please contact us HERE


Volunteering and the TSA


Safeguarding children

TSA Fundraising - Safeguarding Children TSA Fundraising - Safeguarding Children (894 KB)

Safeguarding adults

TSA Publications - Safeguarding Vunerable Adults TSA Publications - Safeguarding Vunerable Adults (1691 KB)

Volunteer recruitment process

Volunteer Expenses Policy

Volunteer expenses claim form Volunteer expenses claim form (26 KB)

DBS Applications

Volunteering DBS Applications Volunteering DBS Applications (480 KB)

Disclosure Guidance

Volunteering Disclosure Guidance Volunteering Disclosure Guidance (400 KB)

Volunteer Policy

Volunteering Policy Volunteering Policy (50 KB)

 

 

Fundraising with the TSA


Sponsorship Forms

Fundraising - Sponsorship Forms Fundraising - Sponsorship Forms (95 KB)


Gift Aid Forms

Fundraising - Gift Aid Form 2015 Fundraising - Gift Aid Form 2015 (38 KB)


Sponsorship Info Pack 

TSA - Sponsorship info pack TSA 2013 TSA - Sponsorship info pack TSA 2013 (5522 KB)

Marketing your fundraising

TSA - Marketing an event - How-to advertise your fundraising TSA - Marketing an event - How-to advertise your fundraising (207 KB)


How to put on an event

TSA - How to put on an event - Blank Budget Form TSA - How to put on an event - Blank Budget Form (72 KB)


Event Idea Flow Chart

TSA - How to put on an event - Event plan doc TSA - How to put on an event - Event plan doc (160 KB)


Blank Budget Form

TSA - How to put on an event - Blank Budget Form TSA - How to put on an event - Blank Budget Form (72 KB)


Event plan

TSA - How to put on an event - Event plan doc TSA - How to put on an event - Event plan doc (160 KB)


Health & Safety

 

TSA - How to put on an event - Health and Safety TSA - How to put on an event - Health and Safety (352 KB)


Event Applications:


Great North Run

Fundraising - Great North Run Application Fundraising - Great North Run Application (47 KB)


Ride London 100<

Fundraising - Ride London 100 Registration Fundraising - Ride London 100 Registration (47 KB)


Virgin London Marathon

Fundraising - Fundraising Pack - Virgin Money Fundraising - Fundraising Pack - Virgin Money (445 KB)




Support


Holiday Information Factsheet

TSA HOLIDAY FACTSHEET 2016 TSA HOLIDAY FACTSHEET 2016 (293 KB)


Visit Irwin Mitchell solicitors’ factsheets
and template letters on the Children and Families Act 2014 HERE

 
The TAND Checklist

TAND stands for Treating TSC Associated Neuropsychiatric Disorders and there is a useful TAND Checklist which you can read in full HERE

Under Tuberous Sclerosis Complex International Guidelines a TAND assessment is recommended for individuals of any age who've been newly diagnosed with TSC. You can read the guidelines HERE.

You can also read more about research into TAND which the TSA is funding HERE.

Please be advised that not all clinics and prescribing centres in the UK currently implement the TAND checklist. However the TSA is actively supporting more to do so. 

 
Mental Wellbeing, Helpful tips
 

Campaigning


MP Template Letter

MP Template Letter MP Template Letter (15 KB)



Research

 

International TSC Research Conference 2015

 

Click HERE to watch an interview with Steve Roberds, PhD.

Click HERE to watch a presentation by Philippa Ward, community speaker.

Click HERE to watch Martin Short, Chair of the Board of Trustees on #TSResearch.

Click HERE to watch a presentation with Marie James, community speaker.

Click HERE to watch an interview with David Franz.

Click HERE to watch an interview with Professor Michael Hall. 

Click HERE to watch an interview with Dr Charlotte Tye and Dr Lucy Wilde.

 

EUPATI Toolkit

The European Patients Academy on Therapeutic Innovation (EUPATI) has developed a toolkit to provide information for anyone who is interested in learning more about the medicines research and development (R&D) process.

Please see the article about the toolkit from the Summer 2016 edition of SCAN on page 17 HERE, or download and read the PDF article HERE

The toolkit itself can be found here: https://www.eupati.eu/

A video about it’s development can be found at: https://vimeo.com/152251690

 
 

TSC Books

Turbo and Scott Graphic Novel.

Novartis have teamed up with DC Comics, publisher of graphic novel series such as Batman and Superman, to create Turbo & Scott. This book educates teens and young adults on living with TSC in a fun and engaging way.
This is a free download, although we do suggest a £5 donation to the TSA. DONATE

turbo-and-scott-graphic-novel turbo-and-scott-graphic-novel (22345 KB)