Volunteer expenses claim form (26 KB)
Volunteering DBS Applications (480 KB)
Volunteering Disclosure Guidance (400 KB)
Volunteering Policy (50 KB)
Fundraising - Sponsorship Forms (95 KB)
Fundraising - Gift Aid Form 2015 (38 KB)
TSA - Sponsorship info pack TSA 2013 (5522 KB)
TSA HOLIDAY FACTSHEET 2016 (293 KB)
TAND stands for Treating TSC Associated Neuropsychiatric Disorders and there
is a useful TAND Checklist which you can read in full HERE.
Under Tuberous Sclerosis Complex International Guidelines a TAND assessment is recommended for individuals of any age who've been newly diagnosed with TSC. You can read the guidelines HERE.
You can also read more about research into TAND which the TSA is funding HERE.
Please be advised that not all clinics and prescribing centres in the UK currently implement the TAND checklist. However the TSA is actively supporting
more to do so.
Mental Wellbeing, Helpful Tips (401 KB)
MP Template Letter (15 KB)
Click HERE to watch an interview with Steve Roberds, PhD.
Click HERE to watch a presentation by Philippa Ward, community speaker.
Click HERE to watch Martin Short, Chair of the Board of Trustees on #TSResearch.
Click HERE to watch a presentation with Marie James, community speaker.
Click HERE to watch an interview with David Franz.
Click HERE to watch an interview with Professor Michael Hall.Click HERE to watch an interview with Dr Charlotte Tye and Dr Lucy Wilde.
The European Patients Academy on Therapeutic Innovation (EUPATI) has developed a toolkit to provide information for anyone who is interested in learning more about the medicines research and development (R&D) process.
The toolkit itself can be found here: https://www.eupati.eu/
A video about it’s development can be found at: https://vimeo.com/152251690
turbo-and-scott-graphic-novel (22345 KB)