Welcome to your new-look  Scottish TSA e-newsletter!
Welcome to your Scottish TSA Newsletter. This provides information specific to the TSC community in Scotland, and is published twice a year, in the Spring and the Autumn. We hope you like it and find it useful.

For support and information you can turn to Lynn
In case you don’t already know this, your TSA Adviser for Scotland is Lynn Shields. Lynn works Tuesdays to Fridays and can be contacted on lynn.shields@tuberous-sclerosis.org telephone number 01236 608257

Keep in touch via Twitter and Facebook
Did you know you can also keep in touch with us
via our social media channels? We post daily
updates on   Twitter @uktsa  and
  Facebook.com/thetsauk  as well as sharing
photos, videos and info which the TSC community
– local, national and international - shares with us.

Update on Scottish Get Together!

Huge thanks to all who came along and supported our annual Scottish Get Together in Scotland. Our grateful thanks to our amazing speakers: Dr Joss (TSC Clinic Glasgow), Heather Noller (Carers Trust), Rhona Matthews (Talking Mats), Linda Mitchell (Scottish Commission for Learning Disability), Ross Craig (Turn 2 Us) and Chloe Burton (Carr Gomm).

The evaluations from the day highlight how much everyone benefited from all the expertise and information. It was wonderful to hear about Carers Rights being strengthened in the near future and the possible changes to the benefits system in Scotland. Please have a look at the easy to use calculator from Turn 2 US. Click HERE for more information.

If any of our community was unable to attend and would like more information, or has any suggestions for future events please do not hesitate to get in touch with Lynn Shields on tel 01236 608257 or email lynn.shields@tuberous-sclerosis.org

Congratulations too to one of our mums Kathryn Morris who won the prize draw from Talking Mats at the event. Kathryn won an app worth over £100 –well done and huge thanks to Talking Mats for providing this great prize as well as supporting the event itself.

Carers Parliament - November 2

One of the Scottish Government's key manifesto commitments was to establish a Carers Parliament. This is a forum providing carers, young carers, and carer representatives from across Scotland an opportunity to discuss and debate matters important to them.

Scottish Ministers, MSPs, and other decision makers are able to hear directly from delegates, to hear of their knowledge and experiences, and participate in debates and discussions. Our TSA Adviser Lynn will be attending the next Carers Parliament on 2 November, and of course continue to highlight any issues our community have, and would welcome our Carers getting in touch (if you haven’t already) to discusses any further issues.

The Scottish Government has commissioned Carers Scotland, on behalf of National Carer Organisations, to organise and manage the Carers Parliament. A Steering Group involving key stakeholders has also been established to oversee the development, management, and evaluation of each Carers Parliament.


Independent Living Fund - Useful information

The Independent Living Fund is still in existence in Scotland and Northern Ireland, even though it has been scrapped in England and Wales. If you are confused about what this means for you then take a look at this easy to read guide to this particular benefit. Click HERE to download and read information.

Consultation on Social Security in Scotland

A consultation is now taking place on the future of Social Security in Scotland. It will be used by the Scottish Government to decide on the primary legislation Bills/Acts) to be introduced to the Scotland Parliament by June 2017.

Benefits being transferred to Scotland are: Ill health and disability benefits – including Disability Living Allowance, Personal Independence Payment, Attendance Allowance, Severe Disablement Allowance and Industrial Injuries Disablement Benefit, Carer’s Allowance, Sure Start Maternity Grants, Funeral Payments, Cold Weather Payments and Winter Fuel Payments, Discretionary Housing Payments, Some powers in relation to Universal Credit.

Benefits to remain reserved to the UK Government are: Universal Credit (which replaces Jobseeker’s Allowance, Income Related Employment Support Allowance, Working Tax Credits, Child Tax Credits and Housing Benefit),State Pension and Pension Credit, Contributory Employment Support Allowance, Child Benefit, Maternity and Paternity Pay.

Find out more about how to respond HERE

The consultation closes 28 Oct 2016

The Scotland Act is available HERE


Turn 2 Us

You could be missing out on financial help available to you through welfare benefits or grants. Turn 2 Us has a free and easy-to-use Benefits Calculator and Grants Search tools can help you check what you might be able to claim or apply for. Please see www.turn2us.org.uk

New sleep support hub

Tired Out, Family Fund’s new sleep support service, is live and ready to support parents and carers of disabled children with sleep issues. Tired Out aims to support families by pulling together all information and resource about sleep and putting it in one place. This includes information about UK-wide support available to families in their local area, useful sleep tips and a wide range of research, resources and stories from families themselves. For more information please see HERE


Shared Care Scotland!

Taking a break means a carer and the person they care for being supported to have a break from their normal routine and the often stressful demands of their caring situation. People without a carer can also benefit from a break from their home circumstances.

Short breaks are an essential part of the overall support that families and carers need to help them care for a family member, partner or friend. Short breaks should deliver positive outcomes for both the carer and the person with care needs. Outcomes might include:

  • A break from day-to-day routines
  • A chance to experience new things
  • Time to rest and recharge the batteries
  • Opportunities to meet new people and maintain friendships
  • Time for personal interests, leisure or cultural activities
  • Improved health and well being
  • Greater independence

For more info please see HERE or contact TSA Adviser Lynn Shields.


Exciting new fundraising opportunities

Great Womens Run Run – 4th June 2017

The Great Womens Run takes place through the streets of Glasgow and this year (2016) we had a team of 8 ladies get together and complete this fantastic 10k run. Why not enter as an individual or get your own team to take part in this iconic run next year? Click HERE for more information.

Edinburgh Marathon Festival Half Marathon
Sunday 28 May 2017

This fast, flat and beautifully scenic half marathon route takes you around Holyrood Park with views of Edinburgh Castle. You will be sure to enjoy a weekend of fun, festivities and sweat! Click HERE for more information.

Tough Mudder Scotland – 17th – 18th June 2017 at Drumlanrig Castle, Thornhill

If running is not your thing, but you fancy doing something physical then why not take on this increasingly popular 5k Tough Mudder challenge run, and raise essential funds for TA at the same time? It’s not just any run, it’s a mud soaked, fun filled challenge! Click HERE for more information.

Buy your TSA Christmas cards now

Support the TSA and buy your Christmas cards from us today. Click here for more details. 

Our 2016 TSA Christmas cards are now on our website where you can either order them online, or you can view your choices and buy direct from your regional group organiser. Or you can contact our Fundraising Officer Kathryn Harrison, direct, on kathryn.harrison@tuberous-sclerosis.org or call her on 0161 681 6015.


Help us celebrate our 40th birthday

Next year – 2017 – will be the 40th anniversary of the founding of the TSA. And to help us to celebrate this we are looking to publish 40 stories throughout the year which recognise not only our journey to date but also look to the future, and, hold 40 dedicated 40th birthday fundraising events. We’ll be bringing you more details of all this in SCAN, on our website, on our Facebook page, our Twitter feed and through our monthly newsletter. But in the meantime, if you have any ideas you’d like to share with us, if you’d like to support our 40th anniversary in any way – or feel you’d like to share your TSC story with us – then please get in touch with Comms Officer Sarah Roberts on sarah.roberts@tuberous-sclerosis.org / 07870 210308 or Fundraising Officer Kathryn Harrison on kathryn.harrison@tuberous-sclerosis.org / 0161 681 6015 at any time. We’d love to hear from you.