|Welcome to your Wales TSA e-newsletter!
Welcome to our first Wales edition of our TSA Newsletter. This new edition aims to provide information specific to the TSC community in Wales, and will be published twice a year, in the Spring and Autumn. We hope you will like it and find it useful.
TSA Big Day - September 17 - save the date!
Our annual get together / conference will be held on Saturday, September 17, at the Belfry Hotel in Nottingham
Tea & Scones 2016!
Last year our Tea & SCones for TSC appeal raised over £4000 and we’d like to thank everyone who took part
Rare Disease Day – February 29
On Rare Disease Day 2016 the Rare Disease Implementation Group met in Cardiff at the All Nations Centre
Rare Disease Implementation Plan for Rare Diseases Wales
Did you know that the Rare Disease Implementation Plan for Rare Diseases was published in February 2015?
New consultation on Autism Strategy for Wales
Earlier this month, the Welsh Government began a new consultation on the refreshed autism strategy for Wales
A huge thank you must go to TSA Ambassador Marie James, who has been nominated for a ITV Health Star Award.
Support via Learning Disability Wale s
Do you know that Leaning Disability Wales could potentially help you or your loved ones with TSC?
New legislation – have more say on social service provision in Wales
The Social Services and Well-Being Wales Act comes into force in Wales this April.
Well-being of Future Generations Wales Act
Since 2015 the Well-Being of Future Generations Wales Act is also law in Wales. This Act look at how bodies including Local Health Boards
Wales Regional Group
Wales Regional Group first met on January 9 at Funsters / New Bounce in Swansea – and a very warm welcome was shared with all new attendees
From the Lab to the Living Room - April 14
From the Lab to the Living Room conference will take place on Thursday, 14 April at the All Nations Centre
Wales genetics clinic update
We continue to meet new families with TSC at the dedicated TSC clinic
Fancy a challenge?
If you’d like to raise funds for us and fancy taking on a physical challenge in the process why not look into taking part in one of these fantastic events?
May 5 – vote for your future in Wales
Just to remind you that on Thursday, May 5, you have the chance to shape the future of your area and your country