Tuberous Sclerosis Association, UK
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Forum rules
This is for people new to Tuberous Sclerosis to ask for help from others with personal experience of TSC. If you are new to TSC, and live in the UK, we strongly suggest you also contact one of the Tuberous Sclerosis Association's Specialist Advisers.
Regular members - why not SUBSCRIBE to this forum to get an email reminder when somebody posts a new message here? You could then provide some quick advice to somebody who might really need some support.
Note: To do this, click the 'subscribe forum' link just below the "New Topic" button. If you see "subscribe topic" rather than "subscribe forum" you should go up one level to the forum level before subscribing, in order to be notified of new topics. (You must be logged in to see the 'subscribe forum' link.)
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| Topics | Author | Replies | Views | Last post | |||
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New to Tuberous Sclerosis? | 0 |
3849 |
Tue 20 Mar, 2007 6:51 pm |
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| Topics | |||||||
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Trileptal and tsc | 2 |
102 |
Thu 26 Aug, 2010 6:59 am |
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sucking seizures. please reply | 2 |
73 |
Tue 24 Aug, 2010 7:25 pm |
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tsc type 1, type 2 whats the difference? | 4 |
399 |
Tue 03 Aug, 2010 8:08 pm |
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we are waiting for our results now | 4 |
201 |
Fri 23 Jul, 2010 4:55 pm |
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5month old just diagnosed with tsc has tumour in her heart | 1 |
223 |
Wed 23 Jun, 2010 12:18 am |
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How can i have my son tested? | 6 |
668 |
Thu 08 Apr, 2010 3:48 pm |
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HELP I NEED PROFESIONAL ADVISES | 2 |
547 |
Sat 27 Mar, 2010 7:03 pm |
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Hi again, definate dianoses | 4 |
847 |
Thu 11 Feb, 2010 1:40 pm |
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Sleepless | 4 |
950 |
Thu 04 Feb, 2010 10:22 am |
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I thought I had my life planned out! | 5 |
922 |
Wed 03 Feb, 2010 10:38 am |
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possible TS? | 15 |
1262 |
Sat 30 Jan, 2010 6:12 pm |
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Infant Granddaughter Just Diagnosed | 3 |
605 |
Mon 25 Jan, 2010 10:28 pm |
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Just found out that I have Tuberous Sclerosis | 2 |
1470 |
Mon 09 Nov, 2009 7:41 pm |
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how do you deal with tsc on a day to day basis? | 2 |
789 |
Sun 01 Nov, 2009 11:54 pm |
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someone talk to me | 5 |
1206 |
Sun 01 Nov, 2009 11:36 pm |
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can having one major feature really equate to no tsc? | 17 |
2064 |
Sun 11 Oct, 2009 5:28 pm |
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Lack of Sleep with TS | 1 |
1086 |
Sat 19 Sep, 2009 1:08 pm |
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hi im new !!!! | 27 |
7901 |
Fri 28 Aug, 2009 4:17 pm |
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New to TS | 2 |
1354 |
Wed 17 Jun, 2009 4:56 pm |
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New to TS and lots of questions | 1 |
1180 |
Tue 16 Jun, 2009 9:47 pm |
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Trying to get my head around all of this!! | 9 |
2333 |
Tue 16 Jun, 2009 12:58 pm |
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 Ash leaf macules?
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3 |
1756 |
Tue 19 May, 2009 2:37 pm |
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Hi I am new... | 2 |
1368 |
Tue 19 May, 2009 2:17 pm |
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Moved: adults mildly affected and kidney bleeds | 4 |
1815 |
Sun 26 Apr, 2009 11:00 am |
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Soft Tissue TB ???? | 2 |
1699 |
Mon 23 Mar, 2009 2:05 pm |
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niece | 2 |
1754 |
Thu 19 Mar, 2009 11:37 pm |
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Just Found to be a Tuberous Sclerosis patient | 5 |
1763 |
Sat 07 Mar, 2009 6:15 pm |
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1 Ungal Fibroma = TS ? | 2 |
1527 |
Sat 07 Mar, 2009 1:04 pm |
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Unable to access Mildly Affected Adults forum | 2 |
1708 |
Sat 28 Feb, 2009 2:40 pm |
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Re : I am confused! | 7 |
2478 |
Sat 10 Jan, 2009 8:12 pm |
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PLEASE HELP ME!!! | 3 |
2545 |
Fri 19 Dec, 2008 11:10 pm |
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Im new to the fourm | 3 |
1720 |
Sat 13 Dec, 2008 10:04 am |
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Help with diagnosis please... | 2 |
1926 |
Sat 18 Oct, 2008 6:48 pm |
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Finley's Dad | 8 |
4982 |
Tue 16 Sep, 2008 2:50 pm |
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Koenen Tumor | 4 |
2469 |
Fri 05 Sep, 2008 1:03 am |
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My 2 year old only rolls her eyes, nothing else. | 5 |
2743 |
Thu 21 Aug, 2008 9:40 pm |
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Butterfly Rash | 20 |
10665 |
Fri 25 Jul, 2008 9:09 am |
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Medicine Dosage | 3 |
2822 |
Fri 11 Jul, 2008 6:08 pm |
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Was here a year ago - now I have MORE questions - frantic :( | 8 |
3845 |
Wed 18 Jun, 2008 7:31 pm |
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Advice Needed | 4 |
3915 |
Tue 17 Jun, 2008 3:00 am |
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Does a clear CT scan mean no Tuberous Sclerosis? | 4 |
3124 |
Wed 04 Jun, 2008 8:49 am |
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Totally confused. Help | 11 |
5048 |
Mon 26 May, 2008 2:58 am |
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Only just heard of TS | 19 |
7249 |
Fri 25 Apr, 2008 4:09 pm |
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Ash leaf spots but no seizures...? | 9 |
6330 |
Thu 10 Apr, 2008 11:11 am |
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Sensory processing issues | 4 |
3018 |
Thu 10 Apr, 2008 10:45 am |
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Hi everyone - New to the forum - TSC Baby Advice please??? | 17 |
8833 |
Wed 09 Apr, 2008 8:40 pm |
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Recent diagnosis of TS for our 2 year old Stevie..Shocked.. | 4 |
3046 |
Mon 31 Mar, 2008 10:42 pm |
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please can some1 help (on behalf of a friend) | 3 |
2641 |
Sun 30 Mar, 2008 5:01 pm |
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waiting for diagnoisis | 1 |
2386 |
Wed 12 Mar, 2008 12:58 am |
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How can I help my daughters development? | 6 |
3448 |
Thu 21 Feb, 2008 8:33 pm |
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