News

Time flies but we have an extra 3 months… Help us put it to excellent use:

Recruitment to the Everolimus AML clinical trial has now been extended to June 2010. By then we need to reach the worldwide target of 99 patients for the trial to give us the answers we need. With 21 patients by February, that is a tall order and we need your help. There is huge interest in the TSC community in a drug which will treat the condition, the researchers are poised, but the trial cannot proceed without enough participants.

So..if you have an AML of at least 3cm in longest diameter and want to find out more please email us or ring 01273 696 955 extension 3541.

The Everolimus SEGA clinical trial is also recruiting 99 worldwide from an even smaller population-people with TSC and an enlarging SEGA at least 1cm in longest diameter. Again, contact us or ring 01273 696 955 extension 3541.

The clock is ticking; let’s really have something to show for those 3 extra months.