Outlook 2019: All you need to know

The TSA is delighted to confirm that Outlook 2019 will take place on Saturday 18 May at Bristol Mercure Holland House Hotel

Tickets to Outlook can be booked via Eventbrite here until 5pm on Friday 10 May. However, please read all of the information on this page before booking.

If you still have any questions after reading the information on this page, please either contact your regional advisor or email Outlook@tuberous-sclerosis.org.

We are looking forward to welcoming adults mildly affected with TSC who might not have come before, as well as our regular Outlookers!

- Team TSA

Outlookers showing their support!

What is Outlook 2019?

Outlook is one of the TSA's most important and fun events of the year, where adults mildly affected with TSC from across the UK come together for FREE to make new (and meet old) friends, share experiences about TSC and attend interesting workshops.

When and where will Outlook 2019 take place?

Outlook 2019 will take place on Saturday 18 May at the Bristol Mercure Holland House Hotel, with Bristol Temple Meads station a 15 minute walk away or 5-10 minute journey by public transport or taxi. Onsite parking is available at a charge. 

How can I go to Outlook 2019?

Tickets to Outlook can be booked via Eventbrite here. However, please read all of the information on this page before booking. Please order your tickets by 5pm on Friday 10 May.

 “I find Outlook events informative. You get to learn a lot about TSC and take part in workshops. You can speak to and meet people who live with TSC, so you don’t feel alone. You can also become pen friends with Outlookers later or socialise on social media.”
- Megan Hattersley

How much does it cost to go to Outlook 2019?

Outlook is FREE to attend for anyone who wants to come along. An optional donation can be made whilst claiming your free ticket, but this is entirely up to you and makes no difference to what you will experience at Outlook.

We understand that the costs associated with attending (such as travel expenses) can sometimes mean that people who want to attend otherwise cannot. That’s why the TSA provides a support fund to assist members who might need it. More information on the support fund can be found here.

Dr Chris Kingswood, talking at a previous Outlook

What things will be at Outlook 2019?

Outlook is always a fun and interesting day, with Outlook 2019 being no different! 

Highlights during the morning include a talk on living with TSC and then learning about some of the latest TSC research taking place. After lunch, Outlookers will have the chance to hear from Adaptive Martial Arts about how learning martial arts, regardless of ability, can help with personal empowerment and control (with a chance to even try some martial arts on the day!) We will then finish off with a brilliant creative artworking session with the theme 'See Me, Not TSC'.

Not sure if you will want to take part in a session or workshop on the day? No problem! At Outlook, you can go at your own pace and choose how much you want to get involved.

The agenda for Outlook 2019 

Is there any sort of dress code at Outlook 2019? (Get colourful!)

There is no dress code at Outlook 2019, so please feel free to wear what you feel most comfortable in. However, following the sad passing of Outlook pioneer Stephen Dale earlier this year, some attendees will be wearing brightly coloured shirts or accessories in honour or Stephen - feel free join in!:

 “A little message for those attending Outlook 2019 in Bristol. We recently lost our good friend and fellow Outlook member, Steve Dale. He will be sorely missed by many and lit up many past Outlook events. As he loved a colourful shirt, I will be attending the event wearing a Hawaiian one. It would be a great way to honour Steve at Outlook if people attending could wear something brightly coloured, like a shirt or garland. I think it would be amazing and you could support a charity by seeing if there is anything suitable in a local charity shop. I am looking forward to seeing all of you who are attending.”
- Andy Wellington
Everyone attending Outlook 2019 is encouraged to get involved in the tribute to Stephen, but do not feel pushed to do. If you would rather wear something different, this is absolutely fine.

Will there be support workers or carers to help me before, during and after Outlook 2019?

The TSA will provide speakers, event organisers and members of staff to oversee the activities on Saturday 18 May. However, the TSA does not provide support workers or carers for people attending this event and we are unable to take responsibility for any vulnerable adult* who attends.

If you think that you will require any support from support workers or carers to participate at Outlook you will be required to provide that care over the course of the event.

*The definition of a vulnerable adult at Outlook is someone who is over the age of 18 who is, or may be, in need of community care services by reason of disability, age or illness and is, or may be, unable to take care of themselves independently.

Over the past 15 years, the Outlook event has given me more confidence in myself, living and working with TSC on a daily basis. It’s a chance to have fun, find out how others are dealing with similar challenges, and learn about new medical treatments and opportunities. I’ve also made some fabulous friends I keep in touch with through social media.”
- Corinne Swainger

I want to book accommodation for the night before. Can the TSA help with this?

If you would like to book a hotel room in the Mercure Holland House Hotel for the night before Outlook (Friday 17 May), please contact the hotel directly on 0117 968 9900. However, should you need any help from the TSA then please email Outlook@tuberous-sclerosis.org.

We have secured special rates for Outlook 2019 with the Mercure Holland House Hotel. If you decide to book a hotel room at the Holland House, please state the code ‘Outlook 2019’ when speaking to their staff to receive the preferential rates (one-night bed and breakfast at £80 single occupancy and £90 double occupancy). To get these rates, please book by Saturday 20 April. Note that room numbers are limited and early booking is advisable to avoid disappointment.

Other nearby hotels to the Mercure Bristol Holland House include the Double Tree by Hilton Bristol City Centre and the Holiday Inn Express Bristol City Centre.

A fun and exciting day at Outlook 2018

Is there anything happening the day before Outlook 2019?

Outlook does not officially begin until 09:30 on Saturday 18 May. However, TSA volunteers and staff members may be around on the day before (Friday 17 May) at the Mercure Holland House Hotel to welcome you informally. In addition, a set menu three-course meal will be organised for Friday 17 May 7:30pm at the Mercure Holland House Hotel at a price of £22 per person (menu here):

Outlook 2019 menu Outlook 2019 menu (42 KB)

If you would like to join us for this meal on the night before Outlook, please contact us at Outlook@tuberous-sclerosis.org with your meal choices and dietary requirements. Bookings for the meal must be confirmed with us by Tuesday 07 May.

Payments for your meal can be made either by Paypal (payable to tsafinance@hotmail.co.uk), cheque (addressed to The Tuberous Sclerosis Association, CAN Mezzanine, 32-36 Loman Street, Southwark, London, SE1 0EH) or cash on the Friday evening. Please note that we cannot accept Gift Aid on these payments.

I still have some extra questions

If you still have any questions, please either contact your regional advisor or email Outlook@tuberous-sclerosis.org.