TSA Blog

  • SCAN Sleep Special - Jackie Murray 'I've cut down on chips!'

    I was diagnosed with TSC at the age of 12. I’ve had it since birth, but it took until then for me to be diagnosed. I really struggle with numbers and simple maths especially division and multiplication. I also suffer from social anxiety and find it difficult to adjust in certain situations. I’ve never had any seizures. But I do have lesions on my skin, especially on my forehead, on my legs and arms. They’re not very noticeable and I don’t get peop.. ...more

  • Football, fun, friendship and fundraising with Ian Black Consulting (Northern Ireland)

    Ian Black Consulting (http://www.ianblackconsulting.co.uk/) is a firm of Consulting Civil and Structural Engineers based in Northern Ireland, who work throughout the UK. We are currently working on schemes in Belfast, Edinburgh, Newcastle, Sheffield, Luton, Brighton and London! For the past 3 years, we have organised a charity 5 A Side event to raise funds for worthy charities. This year we chose the Tuberous Sclerosis Association and Motor Neurone Disease Northern Ireland (https://www.. ...more

  • #rarediseaseday 2018 The talented-mr-terrypt

    Hi, my name is Chigs Terry a TSC sufferer who showed no obvious signs of TSC until I was 13 where I started having blackouts and marching around unaware of what I was doing. I went through periods where I was having regular seizures to not having a seizure for over 5 years, but then started having them again. I went through times of depression, stress etc. But one thing my mother consistently drilled in to my mind is that there are people in the world in worse circumstances than min.. ...more

  • Positive mental health

    Sam Cleasby, Senior Community Office at disability charity Scope has collated a variety of tips from Scope’s online community, which may be useful in nurturing positive mental habits. The full article is here Spending time with people with similar interests and experiences can provide much needed support. Try looking for groups in your local area using a website such as Meetup.com (http://www.meetup.com/), or search online for disability-related or other groups close to y.. ...more