TSA Blog

  • #worldTSCconference - Day 4 final update by Clare Kassa

    I am sitting in Dallas Forth Worth Airport awaiting my first connection homeward bound to the UK. And I am reflecting on the last few days. When I arrived in Texas I had no idea what to expect, I have been to many conferences over the years, but a world conference how different could it be? Well I can put that right now, this is THE best conference I have ever attended for so many reasons. I have had the privilege of listening to world experts on TSC sharing t.. ...more

  • #worldTSCconference - Day 3 update by Clare Kassa

    So another packed day of conference. We have been totally immersed in TSC for the last few days, I haven't left the hotel since I arrived on Tuesday. Networks are definitely being forged, friendships made and access to the big picture of TSC around the world firmly implanted. So after a breakfast of biscuits and gravy (not the Bisto variety, something entirely different!) the day today began with Shelly Meitzler's story about being parent to two children with TSC. She held the audienc.. ...more

  • #worldTSCconference Day 2 update by Clare Kassa

    Wow, where to start to try and distil all the info action from today!!! The TS Alliance have pulled off an amazing conference, so well organised bearing in mind there are over 800 delegates! Where else in the world can you have breakfast with a lovely TSC family from Arizona and lunch with a geneticist from Mexico. Who knows what dinner will hold!! So some highlights from today. The first has to be Dr Chris Kingswood's talk on his own experience of being a parent to a daug.. ...more

  • #worldTSCconference 2018 - Day 1 update from Clare Kassa

    "The 2018 conference officially opened tonight over dinner. So what have I been up to over the last couple of days? I have been attending meetings with colleagues from TS organisations around the world, including Australia, China, Hong Kong, Norway, New Zealand, US, Italy, Belgium to name a few! “What has struck me is the passion with which these organisations represent people with TS, many organisations primarily run by family members and volunteers. The themes acro.. ...more