TSA Blog

  • #worldTSCconference Day 2 update by Clare Kassa

    Wow, where to start to try and distil all the info action from today!!! The TS Alliance have pulled off an amazing conference, so well organised bearing in mind there are over 800 delegates! Where else in the world can you have breakfast with a lovely TSC family from Arizona and lunch with a geneticist from Mexico. Who knows what dinner will hold!! So some highlights from today. The first has to be Dr Chris Kingswood's talk on his own experience of being a parent to a daug.. ...more

  • #worldTSCconference 2018 - Day 1 update from Clare Kassa

    "The 2018 conference officially opened tonight over dinner. So what have I been up to over the last couple of days? I have been attending meetings with colleagues from TS organisations around the world, including Australia, China, Hong Kong, Norway, New Zealand, US, Italy, Belgium to name a few! “What has struck me is the passion with which these organisations represent people with TS, many organisations primarily run by family members and volunteers. The themes acro.. ...more

  • TS World Conference - I hope to make connections and become better informed about resources' says AnneMarie Cotton

    Like Carole Hagan (http://www.tuberous-sclerosis.org/new-tsa-blog/ts-world-conference-why-i-am-going-by-ts-community-member-carole-hagan), mum of two AnneMarie Cotton has been sponsored by the TSA to attend the TS World Conference in Dallas, run by the Tuberous Sclerosis Alliance. Here AnneMarie shares her pre-conference thoughts and expectations, Please tell us a bit about yourself, your daughter and your experiences of TSC? Esme is 14 and loves horse-ri.. ...more

  • TS World Conference - Why I am going by TS community member Carole Hagan

    TS community member Carole Hagan is one of two people the TSA has sponsored to attend the TS World Conference in Dallas. Here mum-of-two Carole shares a little about herself and her involvement with TSC and the TSA before the conference kicks off this Thursday. 1. Please tell us a bit about yourself, your daughter and your experiences of TSC? I have 2 children and my daughter was diagnosed with TSC when she was 5. She has TSC 2. I had never heard of this condition and.. ...more