TSA Blog

  • #rarediseaseday 2018 The talented-mr-terrypt

    Hi, my name is Chigs Terry a TSC sufferer who showed no obvious signs of TSC until I was 13 where I started having blackouts and marching around unaware of what I was doing. I went through periods where I was having regular seizures to not having a seizure for over 5 years, but then started having them again. I went through times of depression, stress etc. But one thing my mother consistently drilled in to my mind is that there are people in the world in worse circumstances than min.. ...more

  • Positive mental health

    Sam Cleasby, Senior Community Office at disability charity Scope has collated a variety of tips from Scope’s online community, which may be useful in nurturing positive mental habits. The full article is here Spending time with people with similar interests and experiences can provide much needed support. Try looking for groups in your local area using a website such as Meetup.com (http://www.meetup.com/), or search online for disability-related or other groups close to y.. ...more

  • My Fundraising Journey by Sylvia Peters

    My Fundraising Journey, by Sylvia Peters I had lived to be almost 80 without being aware of Tuberous Sclerosis. Then a dear little baby was born into a close “extended family” and within a few weeks they received the devastating news of his diagnosis. Since then I have been very much aware of the problems faced. I also approached my 80th birthday so decided to ask for donations for TSA instead of presents. I wanted to do this because I have been so impressed by the work of the Asso.. ...more

  • 'Oh, MRI Scan' by Joel Yearby

    'I wrote this after my ultrasound - it's a rough draft,' writes Joel, who has recently been diagnosed with TSC. Oh MRI scan here we are, soon meet up again for I remember the noise you make, as you do what you do for here we are again to check on my tumors that grows inside of me. For this time the tumors seems to be blocking the view of my kidneys, for I know we have to be checked on with tuberous sclerosis ever so often to keep an eye on my tumors, to decide on whether I n.. ...more