TSA Blog

  • Football, fun, friendship and fundraising with Ian Black Consulting (Northern Ireland)

    Ian Black Consulting (http://www.ianblackconsulting.co.uk/) is a firm of Consulting Civil and Structural Engineers based in Northern Ireland, who work throughout the UK. We are currently working on schemes in Belfast, Edinburgh, Newcastle, Sheffield, Luton, Brighton and London! For the past 3 years, we have organised a charity 5 A Side event to raise funds for worthy charities. This year we chose the Tuberous Sclerosis Association and Motor Neurone Disease Northern Ireland (https://www.. ...more

  • #rarediseaseday 2018 The talented-mr-terrypt

    Hi, my name is Chigs Terry a TSC sufferer who showed no obvious signs of TSC until I was 13 where I started having blackouts and marching around unaware of what I was doing. I went through periods where I was having regular seizures to not having a seizure for over 5 years, but then started having them again. I went through times of depression, stress etc. But one thing my mother consistently drilled in to my mind is that there are people in the world in worse circumstances than min.. ...more

  • Positive mental health

    Sam Cleasby, Senior Community Office at disability charity Scope has collated a variety of tips from Scope’s online community, which may be useful in nurturing positive mental habits. The full article is here Spending time with people with similar interests and experiences can provide much needed support. Try looking for groups in your local area using a website such as Meetup.com (http://www.meetup.com/), or search online for disability-related or other groups close to y.. ...more

  • My Fundraising Journey by Sylvia Peters

    My Fundraising Journey, by Sylvia Peters I had lived to be almost 80 without being aware of Tuberous Sclerosis. Then a dear little baby was born into a close “extended family” and within a few weeks they received the devastating news of his diagnosis. Since then I have been very much aware of the problems faced. I also approached my 80th birthday so decided to ask for donations for TSA instead of presents. I wanted to do this because I have been so impressed by the work of the Asso.. ...more