TSA Blog

  • #worldTSCconference - 'Feeling like one of us, and not one of them' by Annemarie Cotton

    Wednesday 25th July I really can’t quite believe I am in the airport on my own. No airport Special Assistance (daughter!), no last minute unpacking because of large bottles of shower gel in the hand luggage (teenage son!) or panicky conversations about locking the back door (husband!). Instead I am wandering around the duty-free shops trying to find a balance between excitement of heading off to the TSC World Conference and the growing sense of “oh my goodness what do.. ...more

  • #worldTSCconference - 'Empowering the global TSC community' by Carole Hagan

    Dallas, Texas – July 26th- 29th 2018 The TSAlliance 2018 world conference had a colourful logo which had Knowledge, Inspiration and Unity emblazoned on it. The conference certainly achieved those aims from the very first session to the last. 800 people, mostly in families, attended from all over the world, 27 countries were represented including Canada, Spain, Mexico and Israel. It was possible to meet the families at meal times and organised events such as meet and greet.. ...more

  • #worldTSCconference - Day 4 final update by Clare Kassa

    I am sitting in Dallas Forth Worth Airport awaiting my first connection homeward bound to the UK. And I am reflecting on the last few days. When I arrived in Texas I had no idea what to expect, I have been to many conferences over the years, but a world conference how different could it be? Well I can put that right now, this is THE best conference I have ever attended for so many reasons. I have had the privilege of listening to world experts on TSC sharing t.. ...more

  • #worldTSCconference - Day 3 update by Clare Kassa

    So another packed day of conference. We have been totally immersed in TSC for the last few days, I haven't left the hotel since I arrived on Tuesday. Networks are definitely being forged, friendships made and access to the big picture of TSC around the world firmly implanted. So after a breakfast of biscuits and gravy (not the Bisto variety, something entirely different!) the day today began with Shelly Meitzler's story about being parent to two children with TSC. She held the audienc.. ...more