TSA Blog

  • Fundraising

    As we march on in to 2014, at Fundraising HQ we thought you might like to hear how all of our Christmas initiatives went. And, it appears you have all been very generous indeed. This year we sold 613 packs of Christmas Cards, which made the TSA £3202. We also launched our TSA gifts (http://www.tuberous-sclerosis.org/tsa_products/gifts), our e-card and you wonderful lot attached donations to your purchases, these activates made another £1387 for the TSA. .. ...more

  • Volunteering and the TSA

    Hi everyone I’m Tanya the new Volunteer Co-ordinator, I am really excited to have joined the TSA, and set up the new volunteering programme. I believe that through volunteering we can give more support and increase our services. I previously worked with volunteers for a number of years in a managerial and front line role, for a large charity where volunteers helped over 55,000 vulnerable young people. They were an essential part of the organisation, and with over 7000 volu.. ...more

  • THE Landmark paper by Andy Tee

    Posted on 22 March by Dr Andy Tee (Scientific Advisor for TS Association, Senior Lecturer in the Institute of Cancer and Genetics, Cardiff University). When I look back, my scientific journey into Tuberous Sclerosis research has been built purely on luck. But as my mentor (Prof. John Blenis) from Harvard always told me during my golden-years as a care-free post-doctoral scientist, ‘you build your luck with hard work’. I have always been a scientific ‘geek’, wh.. ...more

  • Strength In Numbers

    The 6th Rare Disease Day took place on 28 February 2013. Although a disease or condition might be labeled as “rare”, the number of people in Europe suffering from a rare disease is estimated at over 30 million. Almost all people with rare conditions face common problems; delays in diagnosis, lack of investment into research and inequalities in access to treatments and care. Rare disease day gives the TSA an opportunity to join together with other rare disease organisations to .. ...more