TSA Blog

  • #TSA40stories 'I'd say to anyone - just go for it!'

    ‘We were devastated when our granddaughter Jemima was diagnosed with TSC, and we felt so helpless,’ says Diana Guy, former headteacher and, since 2013, a committed fundraiser for the TSA. ‘It was a very difficult time for us all, and I remember initially having a tremendous feeling of helplessness. ‘But we wanted to do something, anything! So I thought to myself ‘Well, what can I do?’’ Diana, 68, a keen gardener, had already fundraised for other charities through the Nationa.. ...more

  • #TSA40stories 'We can't wait to do it again!'

    Ziggy Ahmed and Sue Brown have been Katherine Lukash’s support workers for seven years. Last year Katherine, 56, who has TSC, and Ziggy, who plays prop forward for Rochdale Mayfield Rugby Club in his spare time, and Sue, a keen recreational horserider, all decided to volunteer for the TSA. Katherine, a keen rugby and football fan, had lived with her mother, Barbara, for all her life. But in 2008, Barbara, a former nurse, sadly passed away and a new chapter began in Kather.. ...more

  • #TSA40stories 'Don't be alone'

    Kimberley Earrey is an affectionate 7-year-old, who currently attends mainstream school and has just learned to swim. Diagnosed with TSC as a baby, prolonged seizures, many lasting up to two hours at a time, dominated the first four years of Kimberley’s life. Born ten weeks premature, Kimberley made good progress until just before her first birthday when she had her first seizure. ‘We’d gone to a friend’s barbecue,’ says Nina, ‘and when we came home Kimberley was a little grou.. ...more

  • #TSA40stories 'Trust your gut instinct'

    Zoe Clark is 23 and has TSC. She is a bright and verbally adept young woman who loves Pokémon and drawing, and now lives in residential care not far from her family in Gloucestershire. Three years ago, however, Zoe was on the brink of death after the rupture of an AML on one of her kidneys. Zoe’s mum Claire takes up the story. ‘Zoe had only just moved into her own place, supported living,’ says Claire, a nurse. ‘She’d been there a week when she texted me late one .. ...more