TSA Blog

  • Dave Deeley - My London Marathon

    "I convinced Rob that running 26 miles was a really fun way to raise funds for the TSA and raise awareness of a great charity." Dave Deeley, one of our London Marathon runners for 2014, on why he has joined Team TSA and even roped in a friend too. To follow all the TSA marathon runners on Sunday 13 April visit our Twitter feed @UKTSA Back in 2009 we had a devastating diagnosis for my son Jack that he had Tuberous Sclerosis, my family and I went through the why Jack and why us stages an.. ...more

  • Adam Pothecary - My London Marathon

    “I have been fundraising using social media and have had success using the old-fashioned sponsorship paper and pen." Adam Pothecary, one of our London Marathon runners for 2014, on training, fundraising and his expectations for the big day. To follow all the TSA marathon runners on Sunday 13 April visit our Twitter feed @UKTSA (https://twitter.com/UKTSA) Having complete four half marathons in as many years in Bath & Cardiff, this year I have entered the London Marathon. Whi.. ...more

  • Rare Disease Day UK Wales Senedd Event 11th Feb 2014

    Over the last 7 years I have followed with great interest the development of Rare Disease Day (RDD) and have attended a number of the receptions held in Wales. Therefore, I was delighted when I was invited to present at the Senedd event this year. My 27 year old son, Trystan, was diagnosed with Tuberous Sclerosis Complex (TSC) when 8 months old and is severely affected by the disorder; this was a wonderful opportunity and a prestigious platform on which to raise TSC awareness. RDD l.. ...more

  • Fundraising

    As we march on in to 2014, at Fundraising HQ we thought you might like to hear how all of our Christmas initiatives went. And, it appears you have all been very generous indeed. This year we sold 613 packs of Christmas Cards, which made the TSA £3202. We also launched our TSA gifts (http://www.tuberous-sclerosis.org/tsa_products/gifts), our e-card and you wonderful lot attached donations to your purchases, these activates made another £1387 for the TSA. .. ...more