TSA Blog

  • Otto Ohlsson - My London Marathon

    "To finally cross that finish line will be so rewarding after all the handwork it took to get there." Otto Ohlsson, one of our London Marathon runners for 2014, reveals why he has joined Team TSA and his marathon journey so far. To follow all the TSA marathon runners on Sunday 13 April visit our Twitter feed @UKTSA I have been living in America for almost 9 years now, so I was here (the US) when Millie was diagnosed with TS. It was really difficult to not be there for my sister and he.. ...more

  • Dave Deeley - My London Marathon

    "I convinced Rob that running 26 miles was a really fun way to raise funds for the TSA and raise awareness of a great charity." Dave Deeley, one of our London Marathon runners for 2014, on why he has joined Team TSA and even roped in a friend too. To follow all the TSA marathon runners on Sunday 13 April visit our Twitter feed @UKTSA Back in 2009 we had a devastating diagnosis for my son Jack that he had Tuberous Sclerosis, my family and I went through the why Jack and why us stages an.. ...more

  • Adam Pothecary - My London Marathon

    “I have been fundraising using social media and have had success using the old-fashioned sponsorship paper and pen." Adam Pothecary, one of our London Marathon runners for 2014, on training, fundraising and his expectations for the big day. To follow all the TSA marathon runners on Sunday 13 April visit our Twitter feed @UKTSA (https://twitter.com/UKTSA) Having complete four half marathons in as many years in Bath & Cardiff, this year I have entered the London Marathon. Whi.. ...more

  • Rare Disease Day UK Wales Senedd Event 11th Feb 2014

    Over the last 7 years I have followed with great interest the development of Rare Disease Day (RDD) and have attended a number of the receptions held in Wales. Therefore, I was delighted when I was invited to present at the Senedd event this year. My 27 year old son, Trystan, was diagnosed with Tuberous Sclerosis Complex (TSC) when 8 months old and is severely affected by the disorder; this was a wonderful opportunity and a prestigious platform on which to raise TSC awareness. RDD l.. ...more