We are delighted to inform the TSC community, researchers, charity collaborators and volunteers that we have appointed our second ever CEO. Louise Fish has a genuine desire to improve services and..
Philip Dunne MP, Minister of State for Health has announced that NHS England will develop an implementation plan for the commitments outlined in the UK Strategy for Rare Diseases that it can infl..
Recently, the All Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions published a report which showed that the UK Strategy for Rare Diseases is not being implemented effectively ..
The Equality and Human Rights Commission (EHRC) want to hear directly from disabled people and relevant organisations in England, Scotland and Wales to help them to understand whether th..