Tuberous Sclerosis News

  • New drug available for US kidney patients

    Commitment of trial participants in UK has far reaching benefits The FDA, the American regulatory body, has this week approved everolimus for the treatment of AML (angiomyolipoma) in TSC adult..

  • Merseyside Support Group: 2013 meeting dates

    Merseyside Support Group The group meets every other month at the Neuro-Support Centre in Liverpool. It provides support and information to those with Tuberous Sclerosis Complex and their carers in an..

  • Insurance information

    If you are having problems with finding travel or life insurance, please click here for Insurance information from the Genetic Alliance (

  • Holiday Information Guide is here!

    Hft’s Family Carer Support Service’s 2012 Holiday Information Guide is here! This free guide is designed for people with learning disabilities and their families This year&rsqu..