Tuberous Sclerosis News

  • News starters for 2014

    The TSA are delighted to announce new members of staff joining the TSA, and bringing with them a wealth of experience that can only help us to better support the TSC community. Here’s a run down o..

  • Vigabatrin - TS Alliance publishes new paper

    All medicines have expected benefits and known risks. The Tuberous Sclerosis Alliance in the USA has published a paper to help parents weigh up the risks and benefits when considering treatment w..

  • Rare Disease Strategy launched for the UK

    The Department of Health today published the UK Rare Diseases Strategy (https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/260562/UK_Strategy_for_Rare_Diseases.pdf) and has ..

  • New Guidelines Released for Diagnosis, Surveillance and Management of TSC

    The Tuberous Sclerosis Alliance (TS Alliance) has formally announced newly updated clinical consensus guidelines for the diagnosis, surveillance and management of tuberous sclerosis complex (TSC)...