Tuberous Sclerosis News

  • Huge Thanks to our London Marathon 2014 Team TSA!

    Sunday 13th April saw 9 runners take part in the London Marathon. We are so proud of all our participants. Here are our runners, their finish times, the funds they've raised already and links to..

  • Critical appraisal training

    Cochrane UK ( and the Critical Appraisal Skills Programme (CASP) ( have just announced a series of free workshops which may be of inter..

  • Guideline Development Group Members Wanted

    The National Institute for Health and Care Excellence (NICE) is seeking members for a guideline development group that will be tasked to produce a social care guideline on transition from children..

  • Patient Groups Unite on Access to Medicines

    Failure of the NHS to fund access to medicines to treat rare conditions such as Tuberous Sclerosis is a major ongoing issue. Today the Genetic Alliance UK have launched a landmark Patient Charter th..