Tuberous Sclerosis News

  • UK clinical trial results published

    Having been closely involved with the project from inception, the TSA is delighted to report that the TESSTAL clinical trial of Sirolimus has been published in the academic press*. As a phase ..

  • Tuberous Sclerosis Association Survey 2012

    The reason for this survey is to find out what people with TSC and their families think of the TSA. We want to know whether we are doing the right things.We also want to know whether ther..

  • TSA's response to the UK Plan for Rare Diseases

    In February the UK’s four health departments, launched a joint public consultation on a UK plan for rare diseases. Representatives from the TSA attended one-day stakeholder engagement events in ..

  • Sibs:New UK wide online service

    Sibs, the UK charity for siblings of disabled people, has launched the first ever UK wide online service for siblings of disabled children. YoungSibs will provide young siblings with much needed infor..