Tuberous Sclerosis News

  • Volunteers' Week 1st-7th June

    It's Volunteers Week on the 1-7th June, so get involved! Send us your stories or information on how you are already helping others with TS. There are lots of different roles to suit you..

  • TSA Consultation Response for Welsh Implementation Plan for Rare Diseases

    Submission from the Tuberous Sclerosis Association (TSA) About Tuberous Sclerosis Complex 1. Tuberous sclerosis complex (TSC) is a genetic condition affecting an estimated 500 peop..

  • Win a Luxury Tea Hamper

    We're delighted that Tea Palace (, the luxury tea company, have kindly donated one of their divine afternoon tea hampers to the Tea ..

  • Write to your MP - Access to Everolimus for TSC

    It's time to #Fight4Treatment Having strongly suspected that access to Everolimus was poor in the UK, the TSA filed Freedom of information requests to find out how many individual funding requ..