The National Institute for Health and Care Excellence (NICE) is seeking members for a guideline development group that will be tasked to produce a social care guideline on transition from children..
Failure of the NHS to fund access to medicines to treat rare conditions such as Tuberous Sclerosis is a major ongoing issue. Today the Genetic Alliance UK have launched a landmark Patient Charter th..
The Association of British Pharmaceutical Industries (ABPI) has commissioned a survey to find out about patient and carer views and experiences in relation to accessing medicines (in the case of TSC, ..
TSA partners with BMJ - Learning to educate professionals about TSC. Timely diagnosis and treatment of any complications are key to ensuring the best possible outcomes for people with TSC. N..