Tuberous Sclerosis News

  • Free information - Special Educational Needs and Disability (SEND) reforms

    KIDS have launched a new suite of resources to support families and carers of disabled children and young people to help them navigate the reforms to Special Educational Needs and Disability provi..

  • Are you facing difficulties in accessing treatment?

    EURORDIS (European Organisation for Rare Diseases) is conducting a survey into the difficulties people are facing in accessing treatment for rare conditions. The survey is in the form of an anonymous ..

  • Design our TSA Christmas Card!

    Design our TSA Christmas Card Are you 16 or under and part of a family affected by TS? Your artwork could be part of the TSA 2014 Christmas Card collection! Your entry can be in paint, penci..

  • Ann Hunt, MBE

    It is with great sadness that we announce to the TSA community the death of Ann Hunt MBE. Ann came into the world of TSC when her youngest son, James, born in 1971, was diagnosed with the T..