Tuberous Sclerosis News

  • Ann Hunt, MBE

    It is with great sadness that we announce to the TSA community the death of Ann Hunt MBE. Ann came into the world of TSC when her youngest son, James, born in 1971, was diagnosed with the T..

  • Fair Access to Medicines in Wales

    For patients with rare conditions, such as TSC, demonstrating that you are exceptional is practically impossible. The TSA has joined forces with Genetic Alliance UK, and the Association of Glycoge..

  • Volunteers' Week 1st-7th June

    It's Volunteers Week on the 1-7th June, so get involved! Send us your stories or information on how you are already helping others with TS. There are lots of different roles to suit you..

  • TSA Consultation Response for Welsh Implementation Plan for Rare Diseases

    Submission from the Tuberous Sclerosis Association (TSA) About Tuberous Sclerosis Complex 1. Tuberous sclerosis complex (TSC) is a genetic condition affecting an estimated 500 peop..