Tuberous Sclerosis News

  • TSA's response to the UK Plan for Rare Diseases

    In February the UK’s four health departments, launched a joint public consultation on a UK plan for rare diseases. Representatives from the TSA attended one-day stakeholder engagement events in ..

  • Sibs:New UK wide online service

    Sibs, the UK charity for siblings of disabled people, has launched the first ever UK wide online service for siblings of disabled children. YoungSibs will provide young siblings with much needed infor..

  • Sending Cheques to the TSA

    Please note that the correct address for sending any fundraising cheques to the TSA is: Tuberous Sclerosis Association PO Box 4923 Sheffield S2 9EU We would be grateful if you ..

  • Results of Exist-2 Study

    In this double-blind, placebo-controlled, phase III trial patients ≥18 years with ≥1 angiomyolipoma ≥3 cm in its longest diameter (based on radiological assessment) and a definite diagnosis o..