NHS England devastating U-turn on drug treatment for brain tumours Last year NHS England promised to develop an in year policy for the use of Everolimus to treat SEGA (brain TSC related tu..
Are you under 16 years old and either have TSC or have someone in your family with TSC? Then why not grab your art gear, get creative and enter our Christmas card design competition? If you wi..
NEWSFLASH... Six places to take part in this September's Great North Run (http://www.greatrun.org/great-north-run) are still available to runners from across the UK who would like to complete ..
We are delighted to announce that NHS England have released the prescribing policy for the treatment of angiomyolipomas (AMLs) in patients with Tuberous Sclerosis Complex. Please find the pol..