Tuberous Sclerosis News

  • Rare Disease Day 2014 – Please help raise political awareness.

    Rare Disease UK (http://www.raredisease.org.uk/) is using Rare Disease Day to raise political awareness and to ask politicians to support the UK Strategy for Rare Diseases. RD-UK has produced a se..

  • News starters for 2014

    The TSA are delighted to announce new members of staff joining the TSA, and bringing with them a wealth of experience that can only help us to better support the TSC community. Here’s a run down o..

  • Vigabatrin - TS Alliance publishes new paper

    All medicines have expected benefits and known risks. The Tuberous Sclerosis Alliance in the USA has published a paper to help parents weigh up the risks and benefits when considering treatment w..

  • Rare Disease Strategy launched for the UK

    The Department of Health today published the UK Rare Diseases Strategy (https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/260562/UK_Strategy_for_Rare_Diseases.pdf) and has ..