Tuberous Sclerosis News

  • #Fight4Treatment consultation underway now - have your say

    The NHS is now carrying out a consultation on the provision of Everolimus to treat SEGA tumours. It is very important that as many people as possible within the TSA community in the UK - peopl..

  • #Fight4Treatment, the time to act is now

    Rare Disease Day, 29th February 2016 We are expecting that NHS England will give their decision on whether the NHS in England will fund Everolimus for TSC patients with SEGA’s and AML in Ma..

  • TSA Big Day 2016

    SAVE THE DATE: 17th September 2016 Where: Nottingham Belfry, Mellors Way, Off Woodhouse Way, Nottigham, NG8 6PY Event details: At this full day event you will have a chance to ..

  • TS Care Treatment - Are you receiving it?

    A new report shows that many people with TS may not be receiving the right care and treatment. TSA Trustee Dr Chris Kingswood and our CEO Dr Jayne Spink are both amongst the authors of the re..