Researchers at Cardiff University are pleased to confirm that they will be opening a centre in Glasgow in June 2016 to aid recruitment to the TRON study. This may be of interest to our com..
Genetic Alliance UK are currently conducting the 'Hidden Costs' study - a study which is testing the feasibility of researching the costs associated with managing rare conditions. The research team ar..
Fundraiser, David Cropper, is running 110 miles for the TSA. Friend to the Dale family, David has decided to run for their son Sam, who has TSC. He is running to support our #Fight4Treatment campa..
Our new Tea & SCones for TSC 2016 video, starring the wonderful Collins family (Jessica, Josh, Oska, Ollie, and mum and dad, Victoria and Dale, as pictured below) from Cardiff, is now on our Y..