Greg Mulholland MP has secured a parliamentary debate entitled ‘Access to drugs for ultra-rare diseases’! It’ll be next Tuesday, 16th June, 2.30pm-4pm, so a whole hour and a half of ..
NHS England has now published the long-awaited urgent and critical need policy. If you or someone you care for has had an individual funding request rejected for access to Everolimus, and their ne..
Greg MulHolland MP led a debate in parliament yesterday (16 June 2015) to highlight failures access to medicines for rare diseases. The debate was well-attended debate supported by MPs from all p..
Six months ago we launched our campaign – and today we are delighted to announce our first significant victory in our Fight4Treatment. The Health Service Journal (HSJ) had today reported that N..