Kelly Gibson of Dumfries is the latest winner of our £300 quarterly Janet Medcalf Award (http://www.tuberous-sclerosis.org/Default.aspx?PageID=13895120&A=SearchResult&SearchID=209946..
PEOPLE with Tuberous Sclerosis, their carers, friends and family are invited to attend a free meeting on Saturday, March 12 where they can find out more about their condition and the support..
The NHS is now carrying out a consultation on the provision of Everolimus to treat SEGA tumours. It is very important that as many people as possible within the TSA community in the UK - peopl..
Rare Disease Day, 29th February 2016 We are expecting that NHS England will give their decision on whether the NHS in England will fund Everolimus for TSC patients with SEGA’s and AML in Ma..