Tuberous Sclerosis News

  • Volunteers needed to review our factsheets

    Why not volunteer to help us to review our information factsheets? If you can spare some time to read new drafts and send us your feedback in your own time we would really appreciate it. ..

  • TSABigDay 2017 workshop topics

    We are planning the workshop topics for the next#TSABigDay ( in September 2017. Within our remit we have the capacity to run 3 workshops, which ..

  • NHS England Agrees to Fund Everolimus for SEGA

    We are delighted to announce that NHS England will now routinely fund Everolimus for inoperable TSC brain tumours (SEGA). This means that NHS England have reversed their previous decision made thi..

  • EUPATI Toolkit

    The European Patients Academy on Therapeutic Innovation (EUPATI) has developed a toolkit to provide information for anyone who is interested in learning more about the medicines research and devel..