Tuberous Sclerosis News

  • Everolimus Access Scheme for Wales

    On 17th September, the Welsh Government wrote to NHS Chief Executives across Wales to inform them that an agreement had been reached with Novartis Pharmaceuticals UK Limited for the provision of ..

  • NHS England confirms review of Everolimus for TSC

    When Everolimus was licensed for the treatment of TSC, no-one imagined that more than 2 years later we would be campaigning for access in the face of a near total failure in NHS funding in England. ..

  • URGENT - WE NEED YOUR HELP

    When Everolimus was licensed for the treatment of TSC more than 2 years ago, no-one imagined that years later we would still be fighting for access in the face of a near total failure in NHS funding i..

  • NEWS FLASH: Ministers Asked to Intervene...

    When Everolimus was licensed for the treatment of TSC none of us imagined that years later we would still be fighting for access. Over the past 2 years, the TSA has been supporting the development o..