The European Patients’ Academy for Therapeutic Innovation (EUPATI) (http://www.eupati.eu/)supports people who access services, and third sector representatives, to understand and..
Do you have TSC with partial refractory seizures or live and care for someone who does? Then Adlephi Values want to hear about your experiences through this online survey (https:..
Trial of Everolimus in the treatment of neurocognitive problems in TSC - TRON study The TRON study is now in its final few weeks of recruitment. It will finish recruiting at the end of August...
This is a message to say a huge thank you to everyone in our TS community who has responded so readily to our recent call for information about Everolimus and Epilepsy. Since we poste..